ACFAC 1-15-14 Agenda

WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information. Staff and community members may be present in the meeting room.

Please have your own copy of the agenda and attachments with you during the meeting.


Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, January 15, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room & Webex

Open Session

1.         Welcome & meeting guidelines (5:00 – 5:15)

            - Officer elections: Chair, secretary chair, secretary (Brian E, Angel)
            - Membership/recruitment option (Colleen)
            - Greet new members and goodbye to departing members!

2.         ACFAC / CF Center partnership (5:15 – 5:50)

            a. Our history since 2008 (Ed, Jay)
            b. Directions for the future:

            - What does the clinic need/want?
            - How can this information be gathered successfully?
            - What do our adult CF patients need/want?
            - How can this information be gathered successfully?
            - How can the council work with the staff to bring these results?

Closed Session

3.         Goals worth striving for (5:55 – 6:25)

            a. Our maturing organization (Laura, Brian E)
            - working with Guest Services

            - bringing staff back to meetings
            - staff invested in council; what do we need to be invested in?
            - changes to consider: blog site; meeting time and length; other adaptations

4.         Adopt November minutes (5:55 – 6:25)

            Please review Jackie's minutes on the blog or via her link previously sent to you.

5.             Action Items (6:25 – 6:30) (Richard)


6.         Adjournment; Next meeting Wednesday, February 19, 2014, 5:00pm – 7:00pm


To attend this meeting via the Webex One Touch System:

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VideoConnection:

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"1-15-2014 Minutes"

ACFAC 1-15-2014 Meeting Minutes

Members Present: Laura, Brian E, Angel, Richard, Ed, Jackie, Elyse, Jay, Victoria

Members Absent: Ann, Colleen, Brian T

Guests Present: Karon

Council Votes: Voted on the new council positions: Brian E (Chairperson) 

Richard (Vice Chair) Angel (Secretary). November minutes voted on and adopted.

Tasks Assigned: None

Project Updates: Discussion on the growth and achievements the council has made during the last six years. When the council was first established the goal was to help form better communication between patients and staff. Over the last two years the councils has partnered with the clinic on projects. The council has raised money for helping patients with traveling expenses, worked with staff to create the Stanford Adult Cystic Fibrosis Facebook page, patients can choose the physician they would like to see, and developed a CFRDM card. 

The future of the council is to strive to meet the clinics vision along with keeping the lines of communication open between staff and council. Investing in what is important to both patients and clinic and encouraging staff to attend meetings. 

Discussion held on the structure of council meetings. Does the time and days work for everyone? Does the blog on the website help? Advantages of the blog are the information is stored online as an archive. Is there a more efficient way to store information such as Google Cloud? Brian E will contact Joan to find out how other councils store there data. 

Other: None. 

  

Action Items (as read by vice-chair): Brian E: Contact Joan about what are the best

practices other councils have in regards to blogs, and archives. Richard: Contact Colleen about CF Education Day in March; possibly get a staff member present for March's meeting.  Richard: Contact Brian T to find out his presence on maintaining the Facebook page. All council members to be prepared to discuss alternative meeting times and days.   

No closed session was held. Meeting called to a close at 6:27pm. 

Next Meeting: February 19, 2014

" 1-15-2014 Minutes"

ACFAC 1-15-2014 Meeting Minutes

Members Present: Laura, Brian E, Angel, Richard, Ed, Jackie, Elyse, Jay, Victoria



Members Absent: Ann, Colleen, Brian T



Guests Present: Karon



Council Votes: Voted on the new council positions: Brian E (Chairperson) 
Richard (Vice Chair) Angel (Secretary). November minutes voted on and adopted.





Tasks Assigned: None



Project Updates: Discussion on the growth and achievements the council has made during the last six years. When the council was first established the goal was to help form better communication between patients and staff. Over the last two years the councils has partnered with the clinic on projects. The council has raised money for helping patients with traveling expenses, worked with staff to create the Stanford Adult Cystic Fibrosis Facebook page, patients can choose the physician they would like to see, and developed a CFRDM card. 


The future of the council is to strive to meet the clinics vision along with keeping the lines of communication open between staff and council. Investing in what is important to both patients and clinic and encouraging staff to attend meetings. 

Discussion held on the structure of council meetings. Does the time and days work for everyone? Does the blog on the website help? Advantages of the blog are the information is stored online as an archive. Is there a more efficient way to store information such as Google Cloud? Brian E will contact Jone to find out how other councils store there data. 





Other: None. 

  



Action Items (as read by vice-chair): Brian E: Contact Jone about what are the best
practices other councils have in regards to blogs, and archives. Richard: Contact Colleen about CF Education Day in March; possibly get a staff member present for March's meeting.  Richard: Contact Brian T to find out his presence on maintaining the Facebook page. All council members to be prepared to discuss alternative meeting times and days.   



No closed session was held. Meeting called to a close at 6:27pm. 



Next Meeting: February 19, 2014