Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, March
22, 2016, 5:00pm-6:20pm
WebEx members should get set up 10 minutes
before the scheduled meeting time using the link provided in the green button
on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as
opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center
cross infection guidelines. Please do
not attend in person if you have an active viral infection or any other
contagious condition.
Please have
this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction
(5:00 – 5:10)
2. Adopt February
minutes (5:10)
Please review
Angel’s minutes on the blog or via her email previously sent to you
3. Project
Update (5:10 – 5:50)
a. CF ED Day
Feedback – All
b. Patient
Survey – Brian
c. Virtual Clinic
Proposal/Online Collaboration – Erick/Brian
Action Items : Brian/Erick to contact IT for a status updates
Action Items : Brian/Erick to contact IT for a status updates
d. CF Encounters
– Devin
Action Items : Collect feedback from Jennifer & Julian and Joan with clinic input; Devin will work on a paragraph to go into the next Newsletter and provide to Zoe
Action Items : Collect feedback from Jennifer & Julian and Joan with clinic input; Devin will work on a paragraph to go into the next Newsletter and provide to Zoe
e. Informational Sheet on Masks – Devin
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
Action Items : Devin to check with the clinic on their recommendations for which mask(s) should be used
f. Issue
Management Decision Tree – Angel/Monica/Jay/Elika
Action Items : Angel will drop off brochures to the clinic Wednesday February 24th. Meg and Joan received the document via email. Angel will post on the Patient Only Facebook Page.
Action Items : Angel will drop off brochures to the clinic Wednesday February 24th. Meg and Joan received the document via email. Angel will post on the Patient Only Facebook Page.
g. Passport (card used for CF advocacy for other ER
visits) URLs – Angel/Linda : New project
h. Coordination
with CFF and external clinic development – Shawn
i. RPQ/MyHealth update – Jay
Action Items : Jay emailed the RPQ Form to Christian to be included with MyHealth for digital download/upload. Christian will contact us once they get further along.
Action Items : Jay emailed the RPQ Form to Christian to be included with MyHealth for digital download/upload. Christian will contact us once they get further along.
j. Clinic-Patient Opportunities –
Angel/Monica/Elika
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
Action Items : Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
4. Action Items
(5:50 – 6:00)
a. Joan – update on file storage recommendation
b. Jay – Jennifer will send Jay a picture of the
ribbon that is currently being used by staff members. Jay will collaborate with
Mary about adding our logo to the ribbon for our name badges
5. Reminders
a. Publicize council
and council activities
b. Continue to complete volunteer requirements
c. Future Projects
Hospital RPQ
Hospital RPQ
CF
Patient Medical Compendium
6. Final Comments/Discussion
(6:00 – 6:10)
Next meeting April 25, 2016
Next meeting April 25, 2016
7. Closed
Session (6:10 – 6:30)
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