ACFPFAC December Agenda

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council
Date/Time: Tuesday, December 13, 2016, 5:00pm-6:20pm Location: Blake Wilbur Room W1084 & Join WebEx
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction(5:00–5:10)
2. AdoptOctoberminutes(5:10)
Please review Linda’s minutes on the blog or via her email previously sent
to you
3. ProjectUpdate(5:15–5:50)

1. Researchstatusupdate–Colleen
   
2. ProposedRewordingofMissionStatement/Namechange–Jay
   Implementation update
   
3. Patient Survey – Brian
   On hold pending Virtual Clinic project
   
4. VirtualClinicProposal/OnlineCollaboration–Brian Volunteers – Jay, Shawn, Angel, Brian, Ed (clinician role)
   
5. CFEncounters–Larissa
   Larissa is continuing to work on the content provided by Devin. Angel will follow up with Jennifer Cannon to gain clinic perspective on the project.
   
6. Informational Sheet on Masks – Larissa
   Larissa will talk with Jennifer Cannon about what are the top three masks for travel.
   
7. InpatientIssueManagementDecisionTree–Angel/Jay/Elika Status on printing/distribution – Angel investigating print options, hopeful delivery in November
   
8. Passport (card used for CF advocacy for other ER visits) URLs – Angel/Linda
   Great response, checking on number required which will lead to the number that needs to be printed. Hope to coordinate with decision tree distribution
   

9. Coordination with CFF and external clinic development – Shawn Likely no updates until January on incorporation of advisory boards
   
10. RPQ/MyHealth update – Jay
    Identified replacement, will try to contact before next council meeting. Some inconsistencies have been identified, would like to work with them to resolve.
    
11. File Management Approach – Jay
    DropBox has a potential solution for file management, will
    investigate further with assistance from Ed.
    
12. Clinic-Patient Opportunities – Angel/Elika
    New request, find out the concerns by the clinic relative to honoring patient requests for providers to wear masks. Will continue to try and push the clinic to support when requested.
    

4. Reminders
a. Publicizecouncilandcouncilactivities

2. Continue to complete volunteer requirements
   
3. Future Projects
   Hospital RPQ
   CF Patient Medical Compendium
   Top requests for clinic – improvement areas or informational needs
   

5. Final Comments/Discussion (6:00 – 6:10)
Next meeting January 23, 2017
6. ClosedSession(6:10–6:30)

Administrator invites you to this meeting.

CF Adult Advisory Council Meeting

Join Using WebEx

Fourth Tuesday at 5:00pm
Occurs the fourth Tuesday of every month effective Aug 23, 2016 until Jan 23, 2018.
4:40 PM | 2 hr 20 min
(UTC-08:00) Pacific Time (US & Canada)
This invitation is for the CF Adult Advisory Council Meeting taking place the fourth Tuesday of each month starting at 5 pm Pacific

Meeting password: w1084 Meeting number: 801090638
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SIP:
6507362631@stanfordmed.org

Meeting Begins at 5:00 pm

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Questions call:
Kevin Hurley
Unified Communications Specialist Stanford Health Care
Mobile: 650-272-7579 khurley@stanfordhealthcare.org
Unified Communications Team: 650-721-2800
DL-SHCUnifiedCommunications@stanfordhealthcare.org

6507362631@stanfordmed.org
Locations:
TP-900 Blake Wilbur-Tumor Board W1084
Audio
Connection
Call-in numbers
Toll: 1-650-479-3208 Toll-free: 1-877-668-4493 Access code: 801090638 Global call-in numbers Toll-free calling restrictions

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