ACFPFAC February Agenda

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council 

Date/Time: Tuesday, February 28, 2017, 5:00pm-6:20pm  

Location: Blake Wilbur  Room W1084 & Join WebEx 

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer. 

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition. 

Please have this copy of the agenda and attachments with you during the meeting. 

Agenda 

1. Introduction (5:00 – 5:10)
   Welcome Abby!
   Thanks Angel for the CF Education Day Presentation!
2. Adopt January minutes (5:10) 

Please review Linda’s minutes on the blog or via her email previously sent to you 

1. Chair Nominations/Discussions
2. Project Update (5:15 – 5:50)
1. Research status update – Colleen 
2. Proposed Rewording of Mission Statement/Name change – Jay
   Implementation update
3. Patient Survey – Brian
   On hold pending Virtual Clinic project
4. Virtual Clinic Proposal/Online Collaboration – Brian
   Volunteers – Jay, Shawn, Angel, Brian, Ed (clinician role)
5. CF Encounters – Larissa
   Larissa is continuing to work on the content provided by Devin.  Angel will follow up with Jennifer Cannon to gain clinic perspective on the project.
6. Informational Sheet on Masks – Larissa
   Larissa will talk with Jennifer Cannon about what are the top three masks for travel.  
7. Inpatient Issue Management Decision Tree – Angel/Jay/Elika
   Status on printing/distribution – Angel investigating print options, hopeful delivery in November
8. Coordination with CFF and external clinic development – Shawn
   
9. RPQ/MyHealth update – Jay
   Identified replacement, will try to contact before next council meeting.  Some inconsistencies have been identified, would like to work with them to resolve.
10. File Management Approach – Jay
    Initial feedback is good to this point
11. Clinic-Patient Opportunities – Angel/Elika
    Update
3. Reminders 
1. Publicize council and council activities 
2. Continue to complete volunteer requirements 
3. Future Projects
   Hospital RPQ 

CF Patient Medical Compendium

Top requests for clinic – improvement areas or informational needs

1. Final Comments/Discussion (6:00 – 6:10) 
   Next meeting March 28, 2017
2. Closed Session (6:10 – 6:30)