Stanford Adult Cystic Fibrosis Patient & Family Advisory Council

Date/Time: Wednesday, March 25, 2020 from 5:30pm-6:50pm 

Location: WebEx

Members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx email or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

 

Advisory Council visitors are welcome.  Please have this copy of the agenda and attachments with you during the meeting.

 

Agenda

1.    Adopt February minutes (5:30)

Please review Shawn’s minutes on the blog or via his email previously sent to you

2.    Project Update (5:30 – 6:30)

a.    Virtual Clinic Proposal/Online Collaboration – Amy/Brook Betts
Update – contact Brook for report

b.    Patient Encounters – Jacob
Update – check with new PFAC on collaboration

c.    Clinic-Patient Opportunities – Shawn/Kate

·         Patient questionnaires should be revisited, is considered valuable.  Shawn to check with clinic during next visit.

d.    MyHealth update – Shawn
Check on incorporation of questionnaire (above)

e.    Bodywork & Value for CF Patients – Olivia
Has been collecting information related to bodywork highlighting benefits, primarily focused on children and young adults.  Will summarize as a resource for patients.

f.     Additional Stanford Volunteer Activities – Shawn/Olivia/Elyse
Walk with Me update as available

g.    Inpatient Preparedness – Shawn

Initial ideas

h.    New Member Drive
Reminder – reach out to CF patients if you are leading a project

3.    Reminders

a.    Publicize council and council activities

b.    Continue to complete volunteer requirements

c.    Future Projects

·         Family Planning – TBD

4.    Final Comments/Discussion (6:30 – ???) 
Next meeting April 22, 2020