12-15-2010 Agenda

Please print your own copy of the agenda and any attachments to assist in cross-infection control!

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. If you would like to attend via WebEx conferencing, please contact Rosie Flores by email at RFlores@stanfordmed.org  at least 24 hours prior to meeting time.  She will respond with information on how to participate.

The Cystic Fibrosis Adult Patient / Family Advisory Council Agenda

Meeting Date/Time:  Wednesday, December 15 , 2010 from 5:00 – 7:00P.M.
Location:  Blake Wilbur Conference Room

INTRODUCTORY REMARKS

1.  Introduction of Council Members (if guests are present)

2.  Introduction of Guests (if guests are present)

3.  Cross Infection Control Guidelines Reminder – Colleen

4.  Approval of Minutes of Previous Meeting

5.  Stanford Liaison Report – Norma

OLD BUSINESS

6.  Bylaw Changes (if needed) – Norma

7.  Election of Officers

8.  Update on Inpatient and Clinic Flyers – Kriss

                  "We Want To Hear Your Voice" flyers for clinic and hospital

                  "Help Us Help You" flyer                             

9.  Update on Website – Norma/Eric

10.  CF Adult Support Groups – Meg/Kriss

                  (See attached flyer for complete information)

The Adult CF Clinic has officially established CF support group meetings!  Beginning in January, they willbe held the first Friday of each month from noon to 1 P.M. at the Li Ka Shing Center for Learning and Knowledge, Rm 304.  So, upcoming CF Support Group Meetings are:

January 7th, February 4th, March 4th, etc from noon to 1pm.

11.  Evaluation Form Information Regarding CF Clinic and Unit 3C – Eric

NEW BUSINESS

12.  Create a Council Email Address? – Kriss

13.  Create a Council Blog? – Kriss

Set date/time for next meeting – January 19, 2011