Anyone calling in
needs to do so AHEAD of time. Call-in or WebEx members should get set up 10
minutes before the scheduled meeting time. Please see the "To attend this meeting via
WebEx" section at the bottom of this agenda if you wish to attend this month's
meeting via WebEx.
Advisory Council visitors
are welcome; however, attendees must respect the CF Center at Stanford cross
infection guidelines. Please do not attend in person if you have an active
viral infection or any other contagious condition.
Only one individual with
CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults
regardless of culture status, MRSA, b. cepacia, and so forth. Contact the
chairperson Laura Steuer for further information.
Please have your own copy of the agenda and attachments with you during the meeting.
Stanford Adult Cystic
Fibrosis Advisory Council (ACFAC) Agenda
Date/Time: Wednesday,
July 17, 2013, 5:00pm-7:00pm
Location: Blake Wilbur
Conference Room & Webex
Open Session
1.
Introductions
& meeting guidelines (5:00 – 5:05)
2.
Adopt
July minutes (5:05 – 5:10)
3.
ACFAC
/ CF Center partnership projects (5:10 – 5:40)
Current project:
“Supporting newly-diagnosed CFRD adults”
·
CFRD resource card:
feedback from endocrine team and CF nutritionist (Angel, Laura)
·
Social Media/FB page:
update from FB developer; process for page invitation/access (Brian E.)
4.
Quick
Updates (5:40 – 5:55)
·
Temp secretary
assignments (Jackie)
Closed session
5.
ACFAC
goals (6:00 – 6:40)
·
Anecdotal research
from patients and clinics; read https://docs.google.com/file/d/0B7WrtjnOi5wMRjA2ZmpWRlFwWDA/edit?usp=sharing (Amber and Angel)
·
Potential council
vision/plan; read https://docs.google.com/file/d/0B7WrtjnOi5wMMVBORmlnSmhBQlE/edit?usp=sharing (Brian E. and Laura)
6.
Readout
of Action Items
(6:40 – 6:45) (Richard)
7. Next meeting: Wednesday, September 18, 5:00pm-7:00pm
#######
To attend this meeting via Webex:
#######
To attend this meeting via Webex:
Topic: CF Meeting- August 2013 Date: Wednesday, August 21, 2013 Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) Meeting Number: 809 236 000 Meeting Password: Wel2010come ------------------------------------------------------- To join the online meeting (Now from mobile devices!) ------------------------------------------------------- 1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&PW=NN DdhZjM5NTE5&RT=MiM0 2. If requested, enter your name and email address. 3. If a password is required, enter the meeting password: Wel2010come 4. Click "Join". To view in other time zones or languages, please click the link: https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&PW=NNDdhZjM5NT E5&ORT=MiM0 ------------------------------------------------------- To join the audio conference only ------------------------------------------------------- To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code. Call-in toll-free number (US/Canada): 1-877-668-4493 Call-in toll number (US/Canada): 1-650-479-3208 Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?service Type=MC&ED=210106587&tollFree=1 Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf Access code:809 236 000 ------------------------------------------------------- For assistance ------------------------------------------------------- 1. Go to https://stanfordmed.webex.com/stanfordmed/mc 2. On the left navigation bar, click "Support". You can contact me at: erwilliams@stanfordmed.org To add this meeting to your calendar program (for example Microsoft Outlook), click this link: https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&ICS=MI&LD=1&RD =2&ST=1&SHA2=AAAAAljvnJmx7P2uXdqUtNDYmIXfyvFoOn17I3XdLzoEDGrS&RT=MiM0 The playback of UCF (Universal Communications Format) rich media files requires appropriate players. To view this type of rich media files in the meeting, please check whether you have the players installed on your computer by going to https://stanfordmed.we bex.com/stanfordmed/systemdiagnosis.php.
