April 2014 Agenda

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, April 16, 5:00pm-6:00pm
Location: Blake Wilbur Conference Room & WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1.  Introduction (5:00 – 5:10)
            Welcome Devin!

2.  Adopt March minutes

a.    Please review Angel’s minutes on the blog or via her email previously sent to you

3.    ACFAC Project Update – (5:15 – 5:35)

a.    MyHealth interviews – all participants

b.    MyHealth mockup – Brian E.

c.     Facebook review – Monica

4.    Action Items from Previous Meeting (5:35 – 5:45)

a.    Joan – conversation with clinic staff and getting their involvement

b.     Joan – provide  update (when appropriate) for cross-domain advisory council, Elyse expressed interest in participating

c.    Joan – follow-up on alignment between volunteer guidelines and current ACFAC membership.  Includes a follow-up for Jay’s issue on information he submitted earlier.

d.    Joan – meet with Ann and Meg concerning the strategy for Ann’s desire to help with fund-raising for the CF community.

e.      Brian E. – draw up rough proposal of potential concept for virtual clinic visits, send to Joan (subject of New Project proposal)

5.    Proposals for New Projects (5:45 – 6:00)

a.    Virtual Clinic Visits

Adjournment - Next meeting 5/21/14, Virtual Meeting Only as Room is not Available

Administrator Administrator invites you to this meeting. April 16th CF WebEx One Touch 4/16/2014 4:45PM Wed, Apr 16, 4:45 PM | 2 hr 45 min (UTC-08:00) Pacific Time (US & Canada) This is a connection for CF WebEx Telepresence. WebEx attendees will need to click the green "Join Using WebEx' tab within this invite and join the audio bridge by phone. Telepresence attendees will need to press the green "Join" button on the tabletop touch screen. Also, enable the camera by clicking the camera icon next to your name in the WebEx participants list. Questions call Tom Metz 650 492 3675 Join Using WebEx Meeting password: 2014 Meeting number: 801224948 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Conf RM W1084 Audio Connection Call-in numbers Toll: 1-650-479-3208 Toll-free: 1-877-668-4493 Access code: 801224948 Global call-in numbers Toll-free calling restrictions

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