August 2014 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, August 20, 5:00pm-6:00pm
Location: Blake Wilbur  Room W1084 & WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1.  Introduction (5:00 – 5:10)

a.   Welcome Annette!

2.  Adopt July minutes

a.    Please review Angel’s minutes on the blog or via her email previously sent to you

3.    CF PAC Project Update – (5:15 – 5:40)

a.    Clinic-Patient Opportunities – Monica/Angel/Elika

                                                    i.     Status Update

                                                  ii.     Ongoing Tracking

b.    Outreach to other advisory boards

                                                    i.     Angel/Ann report out

                                                  ii.     NACFC contact – Brian

                                                iii.     Patient Family Partner Board report out – Brian

c.     MyHealth interviews – no update

d.    Virtual Meeting Proposal – no update

4.    Action Items from Previous Meeting (5:40 – 5:50)

a.    Colleen – provide Joan a list of receipts for the volunteer orientation process.

b.    Elika – email Angel the outreach list for other councils.

c.     Joan to investigate "parking cheats" for "unique cases."

d.    All Members:  Open suggestions "in what ways can CFRI improve and increase resources / outreach programs in the community." Currently CFRI provides The Discovery Series, Community Newsletter, Educational DVD's and the Annual Educations Conference. Think of other ways to reach out?

5.    Proposals for New Projects (5:50 – 6:00)

a.    Clinic form (MyHealth) – Volunteers?

b.    Pending Future Project: Joan and Brian E to contact Christine from MyHealth to see about a possible collaboration between Epic Synopsis and MyHealth

Adjournment - Next meeting 9/17/14

Administrator Administrator invites you to this meeting. CF webex one touch 8/20/14 5-6PM Wed, Aug 20, 5:00 PM | 1 hr (UTC-08:00) Pacific Time (US & Canada) This invite is for the CF webex one touch Meeting Telepresence attendees please press the join button on your touch screen to connect. • WebEx attendees please click the green "Join Using WebEx' tab within this invite. • Next join the WebEx audio bridge by phone. Do not use computer audio. • WebEx attendees to enable your laptop camera click the camera icon next to your name in the meeting participants list. Questions call: Tom Metz Unified Communications 650 492 3675 Join Using WebEx Meeting password: 2013 Meeting number: 342913208 Join Using Telepresence Video address: 7527502@stanfordmed.org Locations: TP-900 Blake Wilbur-Tumor Board W1084 Audio Connection Call-in numbers Toll: +1-415-655-0000 Toll-free: 1-877-668-4488 Access code: 342913208 Global call-in numbers Toll-free calling restrictions

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