April 2015 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, April 15, 5:00pm-6:10pm
Location: Blake Wilbur  Room W1084 & Join WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1. Introduction (5:00 – 5:10)
2. Adopt March minutes (5:10)
   Please review Angel’s minutes on the blog or via her email previously sent to you
3. CF PFAC Project Update – (5:20 – 5:50)
1. CF Encounters – Lauren
2. Issue Management Protocol – Angel/Monica/Elika
3. Virtual Meeting Proposal/Online Collaboration

Coordination with CFF and external clinic development – Shawn

4. Clinic-Patient Opportunities – Angel/Monica/Elika

Status

5. Council Website

Input for potential improvements

4. Action Items from Previous Meeting (5:50 – 6:00)
1. Monica: Email Colleen suggested topics for next years CF Ed Day.
2. Monica: Contact Meg about sharing the Issue Management Protocol projects during a Support Group session.
3. Angel: Follow up with Parking and Transportation on Parking Perks.
4. Angel: Contact Meg once procedure for Parking Perks has been established. See if Meg can provide verbiage for this perk to be posted on the Facebook page.
5. All: If anyone notices a general question posted on the Facebook page and you feel needs more information, share it with the council.
5. Reminders
1. Publicize Council and council activities
6. Final Comments/Discussion/Reminders (6:00 – ??)

Adjournment - Next meeting May 20, 2015

Administrator invites you to this meeting. CF Adult Advisory Council Meeting Occurs the third Wednesday of every month effective Apr 15, 2015 until Mar 16, 2016. 5:00 PM | 2 hr (UTC-08:00) Pacific Time (US & Canada) This invitation is for the CF Adult Advisory Council Meeting taking place the third Wednesday of each month starting at 5 p.m. Pacific • Telepresence attendees please press the join button on your touch screen to connect. • WebEx attendees please click the green "Join Using WebEx' tab within this invite. • Next join the WebEx audio bridge by phone. Do not use computer audio. • WebEx attendees to enable your laptop camera click the camera icon next to your name in the meeting participants list. Questions call: Kevin Hurley Unified Communications Specialist Stanford Health Care 1830 Embarcadero Palo Alto, CA 94303 Office: 650-721-3991 khurley@stanfordhealthcare.org Unified Communications Team: 650-721-2800 DL-SHCUnifiedCommunications@stanfordhealthcare.org Join Using WebEx Meeting password: a1820 Meeting number: 804383588 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Tumor Board W1084 Audio Connection Call-in numbers Toll: 1-650-479-3208 Toll-free: 1-877-668-4493 Access code: 804383588 Global call-in numbers Toll-free calling restrictions

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