Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, September
15, 5:00pm-6:20pm
WebEx members should get set up 10 minutes
before the scheduled meeting time using the link provided in the green button
on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as
opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center
cross infection guidelines. Please do
not attend in person if you have an active viral infection or any other
contagious condition.
Please have
this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction
(5:00 – 5:10)
Welcome Back Annette Hernandez!
Welcome Back Annette Hernandez!
2. Adopt August
minutes (5:10)
Please review
Angel’s minutes on the blog or via her email previously sent to you
3. CF PFAC
Project Update – (5:10 – 5:45)
a. PFAC Update –
Joan
b. Infection
Control Policy – Shawn/Lauren/Colleen
c. CF Encounters
– Lauren/Devin
d. Issue
Management Protocol – Angel/Monica/Elika
e. Virtual
Meeting Proposal/Online Collaboration – Erick/Brian
f. Coordination
with CFF and external clinic development – Shawn
g. MyHealth update – Jay
h. RPQ – Jay/Julian
i. Informational Sheet on Masks – Devin
j. Clinic-Patient Opportunities –
Angel/Monica/Elika
4. Action Items
(5:45 – 6:00)
a. Ed: Work with Mary, Joan and Meg to formalize an
introduction plan going forward for volunteer services
b. Joan: Explore the option of the phone line for
CF Encounter Project
c. Joan: Contact Security regarding getting Devin
and Ed Badge Access to the Conference Room.
d. Colleen: Check and see if the CFF Center
Anonymous Box can be moved to the Adult Center Website.
e. Jay: Email Julian or Elika updated RPF Form
f. Brian and Joan: Set up quarterly meeting with
Dr. Mohabir
g. Angel: Send Shawn council member email list
h. Brian/Colleen: Work with Mary on by-law alignment
requirements discussion
5. Reminders
a. Publicize
Council and council activities
b. Continue to complete Volunteer Requirements
c. Future Projects
CF Patient Medical Compendium
CF Patient Medical Compendium
6. Final
Comments/Discussion (6:00 – 6:10)
Next meeting October 20, 2015
Next meeting October 20, 2015
7. Closed
Session (6:10 – 6:30)
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