Adult Advisory Council Meeting Minutes Nov.17
Members present: Jay, Brian, Angel, Ronni, Erick, Ed, Devin,
Colleen and Linda Burks.
Welcome to our new member: Linda Burks. Linda is the mom of
a soon to be transitioned Son. Additionally, Linda served on the Pediatric
Parent Advisory Council for several years.
The September minutes were unanimously adopted.
Project updates:
1. Virtual
Meeting: we are still interested in being a pilot clinic as soon as
Stanford IT is ready.
ACTION
ITEM: Colleen to provide Erick with
the name of our contract in IT.
ACTION
ITEM: Erick to contact IT for a
status updates
2. CF
Encounters: No new” updates
3. Issue
Management Tree:
a. The
new color version of the “out-patient brochures” was circulated prior to the
meeting.
ACTION ITEM: Angel to contact Meg for confirm that Meg will distribute this form
ACTION ITEM: Colleen to contact Joan: re: budget to print our new project
documents on nice heavy weight paper.
4. My
Health – Jay , no new updates
ACTION ITEM: Jay to contact My Health folks to see if they can get our RPQ form
in a PDF format uploaded into the MyHealth site.
5. Mask
Information Sheet: This document is in a brochure draft status now.
Still need to have Infection Control department and clinic to sign off.
ACTION ITEM: Devin to ask Clinic about a recommendation for which mask(s) they
recommend.
6. Clinic
Patient Opportunities: Recent issue
that has come to the council’s attention: Some medications are unavailable when
patients are admitted (Orakambi, Ivacaftor).
ACTION ITEM: Angel to check with Clinic to determine
which meds aren’t available and what the process should be for patients when
they bring their own medication from home for use while they are in house.
Last Month’s Action
item from October
1. FaceBook
issue: Nothing has happened in 3 months. To be further discussed during
tonight’s closed session.
2. File
Storage: Joan has identified a location. Logistics still pending.
ACTION
ITEM: Joan to provide details to
council.
3. Dissemination
of our documents (CF stories/CF encounters). It was agreed last month that Joan
would be in charge of disseminating our de-identified, instructional CF
experiences. Devin should touch base with Joan to be sure this is the best way
to get items out to other CF providers,
staff members, other clinics, and departments.
New Thought:
Jay reminded old members about our
ACFAC pins that identified council members which could help recruit new members
or increase our visibility in clinic.
ACTION ITEM: Jay will look into some new options for
pins or badges and will present this information next month.
Please continue to
complete your volunteer requirements.
Follow Up on Parking
Perk Pilot Program:
ACTION ITEM: Angel to check in with Meg to see how
the pilot went, was it well received, shall we pursue it further?
