Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, November
17, 5:00pm-6:20pm
WebEx members should get set up 10 minutes
before the scheduled meeting time using the link provided in the green button
on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as
opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center
cross infection guidelines. Please do
not attend in person if you have an active viral infection or any other
contagious condition.
Please have
this copy of the agenda and attachments with you during the meeting.
Agenda
1. Introduction
(5:00 – 5:10)
Welcome Linda Burks!
Welcome Linda Burks!
2. Adopt September
minutes (5:10)
Please review
Angel’s minutes on the blog or via her email previously sent to you
3. Project
Update (5:10 – 5:50)
a. Virtual
Meeting Proposal/Online Collaboration – Erick/Brian
b. CF Encounters
– Lauren/Devin
c. Informational Sheet on Masks – Devin
d. Infection
Control Policy – Shawn/Lauren/Colleen
e. Issue
Management Decision Tree – Angel/Monica/Jay/Elika
f. Coordination
with CFF and external clinic development – Shawn
g. MyHealth update – Jay
h. RPQ – Jay
i. Clinic-Patient Opportunities –
Angel/Monica/Elika
4. Action Items
(5:50 – 6:00)
a. Update on Facebook issue
b. Joan – update on file storage recommendation
c. Joan – provide input on how to disseminate
information to the unit (Ex: RT, in-patient unit, infusion, etc.) for CF
Encounters project
5. Reminders
a. Publicize council
and council activities
b. Continue to complete volunteer requirements
c. Future Projects
CF Patient Medical Compendium
CF Patient Medical Compendium
6. Final
Comments/Discussion (6:00 – 6:10)
Next meeting December 15, 2015
Next meeting December 15, 2015
7. Closed
Session (6:10 – 6:30)
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