May Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Tuesday, May 24, 2016, 5:00pm-6:20pm 

Location: Blake Wilbur  Room W1084 & Join WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1.    Introduction (5:00 – 5:10)

2.    Adopt April minutes (5:10)

Please review Angel’s minutes on the blog or via her email previously sent to you

3.    Report on CF Education Day (5:10-5:15) – Colleen

4.    Project Update (5:15 – 5:50)

a.    Patient Survey – Brian

b.    Virtual Clinic Proposal/Online Collaboration – Brian
Action Items : Brian to provide update on status

c.    CF Encounters – Devin
Action Items : Collect feedback from Jennifer & Julian and Joan with clinic input; Devin will work on a paragraph to go into the next Newsletter and provide to Zoe

d.    Informational Sheet on Masks – Devin
Action Items : Complete Documentation

e.    Issue Management Decision Tree – Angel/Monica/Jay/Elika
Action Items : Capture input for inpatient decision flow for inpatient form.  Initially work with contact from Jay.

f.     Passport (card used for CF advocacy for other ER visits) URLs – Angel/Linda : Angel to capture information to be posted and develop a proof.

g.    Coordination with CFF and external clinic development – Shawn

h.    RPQ/MyHealth update – Jay
Action Items : Jay emailed the RPQ Form to Christian to be included with MyHealth for digital download/upload. Christian will contact us once they get further along.

i.      Clinic-Patient Opportunities – Angel/Monica/Elika
Action Items : List to be reviewed and documented for future use, at minimum posted to Facebook page.

5.    Action Items (5:50 – 6:00)

a.    Joan – update on file storage recommendation

b.    Jay – Will distribute ribbons for Volunteer badges

6.    Reminders

a.    Publicize council and council activities

b.    Continue to complete volunteer requirements

c.    Future Projects
Hospital RPQ

CF Patient Medical Compendium

7.    Final Comments/Discussion (6:00 – 6:10) 
Next meeting June 28, 2016

8.    Closed Session (6:10 – 6:30)

	Administrator invites you to this meeting.

CF Adult Advisory Council Meeting Fourth Tuesday at 5:00pm Occurs the fourth Tuesday of every month effective Jan 26, 2016 until Jan 31, 2017. 4:45 PM | 2 hr 15 min (UTC-08:00) Pacific Time (US & Canada) This invitation is for the CF Adult Advisory Council Meeting taking place the fourth Tuesday of each month starting at 5 pm Pacific Meeting Begins at 5:00 pm WebEx and TelePresence Connections Open at 4:45 pm • Telepresence attendees please press the join button on your touch screen to connect. • WebEx attendees please click the green "Join Using WebEx' tab within this invite. • Next join the WebEx audio bridge by phone. Do not use computer audio. • Please mute your phone until you are ready to speak • WebEx attendees to enable your laptop camera click the camera icon next to your name in the meeting participants list. Questions call: Kevin Hurley Unified Communications Specialist Stanford Health Care Mobile: 650-272-7579 khurley@stanfordhealthcare.org Unified Communications Team: 650-721-2800 DL-SHCUnifiedCommunications@stanfordhealthcare.org

Join Using WebEx Meeting password: w1084 Meeting number: 801090638 Join Using Telepresence Video address: 6507362631@stanfordmed.org Locations: TP-900 Blake Wilbur-Tumor Board W1084 Audio Connection Call-in numbers Toll: 1-650-479-3208 Toll-free: 1-877-668-4493 Access code: 801090638 Global call-in numbers Toll-free calling restrictions