ACFPFAC October Agenda

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council

Date/Time: Tuesday, October 25, 2016, 5:00pm-6:20pm Location: Blake Wilbur Room W1084 & 

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Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.

Agenda
1. Introduction(5:00–5:10) 2. Adopt July minutes (5:10)
Please review Linda’s minutes on the blog or via her email previously sent
to you
3. ProjectUpdate(5:15–5:50)

1. ProposedRewordingofMissionStatement/Namechange–Jay Implementation update
   
2. PatientSurvey–Brian
   On hold pending Virtual Clinic project
   
3. Virtual Clinic Proposal/Online Collaboration – Brian
   Would like to find clinician to participate, potential partners are CFF and Colleen will check for interest at the conference
   
4. CFEncounters–Larissa
   Larissa will contact Devin about this project and see what is involved with continuing this project. Angel will follow up with Jennifer Cannon to gain clinic perspective on the project.
   
5. Informational Sheet on Masks – Larissa
   Larissa will talk with Jennifer Cannon about what are the top three masks for travel.
   
6. Inpatient Issue Management Decision Tree – Angel/Jay/Elika Status on printing/distribution.
   
7. Passport (card used for CF advocacy for other ER visits) URLs – Angel/Linda
   Status on printing/distribution.
   
8. Coordination with CFF and external clinic development – Shawn
   

9. RPQ/MyHealth update – Jay
   Identified replacement, will try to contact before next council meeting. Some inconsistencies have been identified, would like to work with them to resolve.
   
10. File Management Approach – Jay
    DropBox has a potential solution for file management, will
    investigate further with assistance from Ed.
    
11. Clinic-Patient Opportunities – Angel/Elika
    New request, find out the concerns by the clinic relative to honoring patient requests for providers to wear masks. Will continue to try and push the clinic to support when requested.
    

4. Reminders
a. Publicizecouncilandcouncilactivities

2. Continue to complete volunteer requirements
   
3. Future Projects
   Hospital RPQ
   CF Patient Medical Compendium
   

5. Final Comments/Discussion (6:00 – 6:10)
Next meeting November 22, 2016
6. ClosedSession(6:10–6:30)

Administrator invites you to this meeting.

CF Adult Advisory Council Meeting Fourth Tuesday at 5:00pm
Occurs the fourth Tuesday of every month effective Aug 23, 2016 until Jan 23, 2018.
4:40 PM | 2 hr 20 min
(UTC-08:00) Pacific Time (US & Canada)

Meeting password: w1084 Meeting number: 801090638

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This invitation is for the CF Adult Advisory Council Meeting taking place

the fourth Tuesday of each month starting at 5 pm Pacific
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Questions call:
Kevin Hurley
Unified Communications Specialist Stanford Health Care
Mobile: 650-272-7579 khurley@stanfordhealthcare.org
Unified Communications Team: 650-721-2800
DL-SHCUnifiedCommunications@stanfordhealthcare.org

SIP:
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Locations:
TP-900 Blake Wilbur-Tumor Board W1084

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