Monday, October 26, 2020
Stanford Adult Cystic Fibrosis Patient & Family Advisory Council
Date/Time: Wednesday, October 28, 2020 from 5:30pm-6:50pm
Location: WebEx
Members should get set up 10 minutes before the scheduled. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Please have this copy of the agenda and attachments with you during the meeting.
Agenda
1. Adopt September minutes (5:30)
Please review Shawn’s minutes on the blog or via his email previously sent to you. For October meeting, consider next meeting may not be until January.
2. Project Update (5:30 – 6:30)
a. Pharmacy aide for CF clinic – Amy/Brook Betts
Elika is promoting need for pharmacist support within clinic. Transitioning patients from peds is helping highlight the need. Virtual visits (pre- and post-clinic) would be very beneficial
b. Virtual council office hours – Jacob/Shawn/Colleen
Investigate further on execute methodology. Potential use of Facebook or another platform such as Instagram. Assume low interest at first.
c. Promotion of mentor program – Shawn/Elyse
Mary to check on incorporation of support availability to peds prior to transition. May incorporate into office hours. Emphasize informality – this is not social work
d. Patient Encounters – Jacob/Colleen
Get Colleen & Jacob in contact w/ PFAC education lead
e. Clinic-Patient Opportunities – Colleen
Talk w/ Dr. Mohabir on clinic needs
f. MyHealth update – Shawn
Elika is in favor of the idea and will pursue. Shawn will reach out to Elika for update.
g. Yoga for CF Patients – Olivia
Found volunteer to help get information to CF patients. Will post information on Facebook to measure interest
h. Inpatient Preparedness – Shawn
Started capturing list of content that would be considered valuable, will send out for review prior to the next meeting.
i. Quarterly Newsletter Input – Shawn
j. Additional Stanford Volunteer Activities – Shawn/Olivia/Elyse
Program contacting patient volunteers
k. New Member Drive
Reminder – reach out to CF patients if you are leading a project
3. Reminders
a. Publicize council and council activities
b. Continue to complete volunteer requirements
c. Future Projects
• Family Planning – TBD
4. Final Comments/Discussion (6:30 – ???)
Next meeting ????
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