Jan 2021

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council Date/Time: Wednesday, January 27, 2021 from 5:30pm-6:50pm Location: WebEx Members should get set up 10 minutes before the scheduled. It is recommended you call in for audio as opposed to using your computer. Advisory Council visitors are welcome. Please have this copy of the agenda and attachments with you during the meeting. Agenda 1. Adopt November minutes (5:30) Please review Shawn’s minutes on the blog or via his email previously sent to you. 2. Project Update (5:30 – 6:30) a. Pharmacy aide for CF clinic – Amy/Brook Betts Sideline for now – a funding issue which we have no influence b. Virtual council office hours – Jacob/Shawn/Colleen Initial plan discussed and input captured. Jacob will lead with respect to making it available on Instagram. Investigate method to improve awareness for transitioning pediatric patients. c. Clinic-Patient Opportunities – Colleen Shawn to contact Paul to get clarification on “clinic flow” – should be prescriptive with regards to suggestions on questionnaire, desired contacts, and time capture. Pull in MyHealth update to this. d. Inpatient Preparedness – Shawn Captured feedback, looked good. Provided as input to quarterly newsletter. Will be posted on blog as well as Facebook. e. Additional Stanford Volunteer Activities – Shawn/Olivia/Elyse Walk with Me is active again and still going well. f. New Member Drive Reminder – reach out to CF patients if you are leading a project 3. Reminders a. Publicize council and council activities b. Continue to complete volunteer requirements c. Future Projects Patient Encounters – Jacob/Colleen Yoga for CF patients Extensions of pharmacist/virtual visit opportunities 4. Final Comments/Discussion (6:30 – ???) Next meeting February 24, 2021