March Board Meeting

Stanford Adult Cystic Fibrosis Patient & Family Advisory Council Date/Time: Wednesday, April 22, 2021 from 5:30pm-6:50pm Location: WebEx Members should get set up 10 minutes before the scheduled. It is recommended you call in for audio as opposed to using your computer. Advisory Council visitors are welcome. Please have this copy of the agenda and attachments with you during the meeting. Agenda 1. Adopt January minutes (5:30) Please review Shawn’s minutes on the blog or via his email previously sent to you. 2. Council office interest Volunteers – what they would like to bring to the council office they are interested in Vote for preferred candidate 3. Stanford CF Quarterly Newsletter – Due start of April 4. Project Update (5:30 – 6:30) a. Virtual council office hours – Jacob/Shawn/Colleen Initial plan discussed and input captured. Jacob will lead with respect to making it available on Instagram. b. Clinic-Patient Opportunities – Shawn No feedback as of yet. Shawn to check in during clinic visit c. Inpatient Preparedness – Shawn Captured feedback, looked good. Soon to be posted on Facebook. d. Discuss potential for enhancement opportunities of virtual interaction between clinic and CF patients – similar to Town Halls that the transplant team have produced. – Elyse Will re-evaluate in the future e. Additional Stanford Volunteer Activities – Shawn/Olivia/Elyse Walk with Me is active, virtual aspect may be taking away the perceived uniqueness of the opportunity f. New Member Drive Reminder – reach out to CF patients if you are leading a project 5. Reminders a. Publicize council and council activities b. Continue to complete volunteer requirements c. Future Projects Patient Encounters – Jacob/Colleen Yoga for CF patients Extensions of pharmacist/virtual visit opportunities 6. Final Comments/Discussion (6:30 – ???) Next meeting May 26, 2021