February 19, 2014

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the Webex dialog below.  There is also a link at the bottom of the form that can be copied and pasted into a browser window if the link does not work correctly for you.

Advisory Council visitors are always welcome.  Attendees must respect the CF Center at Stanford cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, February 19, 5:00pm-6:30pm 

Location: Blake Wilbur Conference Room & Webex

Open Session

1.    Action Items from Previous Meeting (5:00 – 5:15)

a.    Brian E: Contact Joan about what are the best practices other councils have in regards to blogs and interaction with Stanford organizations.

b.    Brian E: Talk to Colleen about continuing as member chair and confirm interest in remaining a voting member.

c.     Richard: Contact Colleen about CF Education Day in March; possibly get a staff member present for March's meeting.

d.    Richard: Contact Brian T to find out his presence on maintaining the Facebook page.

e.    All council members to be prepared to discuss alternative meeting times and days.

2.    Logistics (5:15 – 5:45)

a.    Meeting Time – Proposed new time?

b.    Meeting Length
c.  Open/Closed Sessions

d.     Posting Meeting Announcement Info to At-Large Community

e.    Periodic CF Related Updates – Value add for meetings?

                                                    i.     Stanford Research

                                                  ii.     Additional Suggestions

3.    Projects (5:45 - 6:00)

a.    ACFAC / CF Center partnership

b.    Previous projects – are updates required

4.    Proposals for New Projects (6:00 - 6:10)

Closed Session

1.  Bylaw Change Proposals (6:10 – 6:20)

2.  Adopt November minutes (6:25 – 6:27)

a.   Please review Jackie's minutes on the blog or via her link previously sent to you.

3.    Action Items (6:27 – 6:30) (Richard)

4.    Adjournment - Next meeting TBD

Webex One Touch System (Video):

Webex Administrator invites you to this meeting. CF Group Meeting 2/19/2014 4:30PM-7PM Wed, Feb 19, 4:30 PM | 2 hr 30 min (UTC-08:00) Pacific Time (US & Canada) CF Group Meeting WebEx attendees will need to click the green "Join Using WebEx' tab within this invite and join the audio bridge by phone. Also, enable the camera by clicking the camera icon next to your name in the WebEx participants list. It is recommended that you mute your audio unless you are speaking. Questions call Tom Metz 650 492 3675 Join Using WebEx Meeting password: 1234 Meeting number: 343917972 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Conf RM W1084 Audio Connection Call-in numbers Toll: +1-415-655-0000 Toll-free: 1-877-668-4488 Access code: 343917972 Global call-in numbers Toll-free calling restrictions

If you need the host key or cannot join the meeting using WebEx from this email message, select the link below:

https://stanfordmedot2eft.webex.com/stanfordmedot2eft/j.php?ED=157249882&UID=0&PW=9a7ee09746575f58&RT=NCMy

Need more details about joining the meeting using telepresence?

https://10.243.78.17/tms/default.aspx?pageId=79&ConfId=8579&View=true

Having trouble joining from a telepresence room? Get help.

Attendees should use their computer for video. It is recommended to connect via an Ethernet connection, as opposed to Wi-Fi, if possible to improve performance.  To enable your camera, click the camera icon next to your name in the WebEx participants list.  It is also recommended for attendees to use their phone for audio for improved performance and reliability.

ACFAC 1-15-14 Agenda

WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information. Staff and community members may be present in the meeting room.

Please have your own copy of the agenda and attachments with you during the meeting.


Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, January 15, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room & Webex

Open Session

1.         Welcome & meeting guidelines (5:00 – 5:15)

            - Officer elections: Chair, secretary chair, secretary (Brian E, Angel)
            - Membership/recruitment option (Colleen)
            - Greet new members and goodbye to departing members!

2.         ACFAC / CF Center partnership (5:15 – 5:50)

            a. Our history since 2008 (Ed, Jay)
            b. Directions for the future:

            - What does the clinic need/want?
            - How can this information be gathered successfully?
            - What do our adult CF patients need/want?
            - How can this information be gathered successfully?
            - How can the council work with the staff to bring these results?

Closed Session

3.         Goals worth striving for (5:55 – 6:25)

            a. Our maturing organization (Laura, Brian E)
            - working with Guest Services

            - bringing staff back to meetings
            - staff invested in council; what do we need to be invested in?
            - changes to consider: blog site; meeting time and length; other adaptations

4.         Adopt November minutes (5:55 – 6:25)

            Please review Jackie's minutes on the blog or via her link previously sent to you.

5.             Action Items (6:25 – 6:30) (Richard)


6.         Adjournment; Next meeting Wednesday, February 19, 2014, 5:00pm – 7:00pm


To attend this meeting via the Webex One Touch System:

Attendees should use their computer for video. Connect using a computer that is plugged in and not Wi-Fi.  To enable your camera, click the camera icon next to your name in the WebEx participants list.

Attendees should use their phone for audio not the computer. The reason for the above is that is it takes a lot of power to connect to Wi-Fi and you may be dropped from the call and have to reconnect.


VideoConnection:

To join the meeting , go to   https://stanfordmedot2eft.webex.com/mw0401l/mywebex/default.do?service=1&siteurl=stanfordmedot2eft&nomenu=true&main_url=%2Fmc0901l%2Fe.do%3Fsiteurl%3Dstanfordmedot2eft%26AT%3DMI%26EventID%3D156954782%26UID%3D0%26Host%3D8b8b9536781f542c32021b%26FrameSet%3D2%26PW%3D4b8fb708227f617f70

AudioConnection:

Call-in numbers
Toll: +1-415-655-0000
Toll-free: 1-877-668-4488
Access code: 341638495

Join Using WebEx Meeting password: 1234 Meeting number: 341638495 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Conf RM W1084 Audio Connection Call-in numbers Toll: +1-415-655-0000 Toll-free: 1-877-668-4488 Access code: 341638495

"1-15-2014 Minutes"

ACFAC 1-15-2014 Meeting Minutes

Members Present: Laura, Brian E, Angel, Richard, Ed, Jackie, Elyse, Jay, Victoria

Members Absent: Ann, Colleen, Brian T

Guests Present: Karon

Council Votes: Voted on the new council positions: Brian E (Chairperson) 

Richard (Vice Chair) Angel (Secretary). November minutes voted on and adopted.

Tasks Assigned: None

Project Updates: Discussion on the growth and achievements the council has made during the last six years. When the council was first established the goal was to help form better communication between patients and staff. Over the last two years the councils has partnered with the clinic on projects. The council has raised money for helping patients with traveling expenses, worked with staff to create the Stanford Adult Cystic Fibrosis Facebook page, patients can choose the physician they would like to see, and developed a CFRDM card. 

The future of the council is to strive to meet the clinics vision along with keeping the lines of communication open between staff and council. Investing in what is important to both patients and clinic and encouraging staff to attend meetings. 

Discussion held on the structure of council meetings. Does the time and days work for everyone? Does the blog on the website help? Advantages of the blog are the information is stored online as an archive. Is there a more efficient way to store information such as Google Cloud? Brian E will contact Joan to find out how other councils store there data. 

Other: None. 

  

Action Items (as read by vice-chair): Brian E: Contact Joan about what are the best

practices other councils have in regards to blogs, and archives. Richard: Contact Colleen about CF Education Day in March; possibly get a staff member present for March's meeting.  Richard: Contact Brian T to find out his presence on maintaining the Facebook page. All council members to be prepared to discuss alternative meeting times and days.   

No closed session was held. Meeting called to a close at 6:27pm. 

Next Meeting: February 19, 2014

" 1-15-2014 Minutes"

ACFAC 1-15-2014 Meeting Minutes

Members Present: Laura, Brian E, Angel, Richard, Ed, Jackie, Elyse, Jay, Victoria



Members Absent: Ann, Colleen, Brian T



Guests Present: Karon



Council Votes: Voted on the new council positions: Brian E (Chairperson) 
Richard (Vice Chair) Angel (Secretary). November minutes voted on and adopted.





Tasks Assigned: None



Project Updates: Discussion on the growth and achievements the council has made during the last six years. When the council was first established the goal was to help form better communication between patients and staff. Over the last two years the councils has partnered with the clinic on projects. The council has raised money for helping patients with traveling expenses, worked with staff to create the Stanford Adult Cystic Fibrosis Facebook page, patients can choose the physician they would like to see, and developed a CFRDM card. 


The future of the council is to strive to meet the clinics vision along with keeping the lines of communication open between staff and council. Investing in what is important to both patients and clinic and encouraging staff to attend meetings. 

Discussion held on the structure of council meetings. Does the time and days work for everyone? Does the blog on the website help? Advantages of the blog are the information is stored online as an archive. Is there a more efficient way to store information such as Google Cloud? Brian E will contact Jone to find out how other councils store there data. 





Other: None. 

  



Action Items (as read by vice-chair): Brian E: Contact Jone about what are the best
practices other councils have in regards to blogs, and archives. Richard: Contact Colleen about CF Education Day in March; possibly get a staff member present for March's meeting.  Richard: Contact Brian T to find out his presence on maintaining the Facebook page. All council members to be prepared to discuss alternative meeting times and days.   



No closed session was held. Meeting called to a close at 6:27pm. 



Next Meeting: February 19, 2014

ACFAC 11-20-13 Meeting Minutes

ACFAC Minutes  - November 20, 2013

 

Members Present: Laura, Angel, Brian T., Ed, Elyse, Brian E., Ann, Jackie, Colleen, Richard, Amber

 

Members Absent: Jay

 

Guests Present: Caron, Siri

 

Council Votes: September minutes voted on and adopted

 

Tasks Assigned: Council members to decide whether or not he/she is interested in any officer roles.  Open officer roles for the upcoming year are : Chairperson, Secretary, Membership Chair.  The council will vote on the new officers in January.

 

Project Updates: CFRD project has concluded with implementation of the closed Facebook page and completion of the CFRD resource card. Discussion held regarding the importance of keeping the traffic up on the closed CF Facebook page

 

Other: Membership update as follows - Laura, Colleen and Amber resigning from the council. Reminder – No meeting in December.

 

Action Items (as read by vice-chair): Brian T. and Laura to write piece for CF newsletter, Laura to add a link for the Facebook page to the CFRD resource card, Richard to work with Caron on how to display info for CF patients on CF clinic days, Elyse will act as a "Facebook laison" helping to encourage traffic on the page, Laura to talk with Joan about the structure of the council, and Richard to connect with clinic staff regarding recruitment.