ACFAC 11-20-13 Meeting Minutes

ACFAC Minutes  - November 20, 2013

 

Members Present: Laura, Angel, Brian T., Ed, Elyse, Brian E., Ann, Jackie, Colleen, Richard, Amber

 

Members Absent: Jay

 

Guests Present: Caron, Siri

 

Council Votes: September minutes voted on and adopted

 

Tasks Assigned: Council members to decide whether or not he/she is interested in any officer roles.  Open officer roles for the upcoming year are : Chairperson, Secretary, Membership Chair.  The council will vote on the new officers in January.

 

Project Updates: CFRD project has concluded with implementation of the closed Facebook page and completion of the CFRD resource card. Discussion held regarding the importance of keeping the traffic up on the closed CF Facebook page

 

Other: Membership update as follows - Laura, Colleen and Amber resigning from the council. Reminder – No meeting in December.

 

Action Items (as read by vice-chair): Brian T. and Laura to write piece for CF newsletter, Laura to add a link for the Facebook page to the CFRD resource card, Richard to work with Caron on how to display info for CF patients on CF clinic days, Elyse will act as a "Facebook laison" helping to encourage traffic on the page, Laura to talk with Joan about the structure of the council, and Richard to connect with clinic staff regarding recruitment.

 

 

11-20-13 Agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, November 20, 2013, 5:00pm-7:00pm 

Location: Blake Wilbur Conference Room & Webex

1)       Introductions & meeting guidelines (5:00 – 5:05)

2)    Adopt September minutes (5:05 – 5:10)

•  Read minutes at http://cfacmeetings.blogspot.com/2013/09/9-18-13-meeting-minutes.html

3)    ACFAC / CF Center CFRD partnership project (5:10 – 5:25)

•  Facebook page: progress, topics, feedback, ACFAC presence (Brian T., Brian E.)
• CFRD resource card: final version at https://drive.google.com/file/d/0B7WrtjnOi5wMQ2ZzcU5GcEtGTEU/edit?usp=sharing  (Laura)

4)    Council roles and positions (5:25 – 6:00)

•  Officer roles, membership update, future direction

5)    ACFAC/clinic vision project (6:00 – 6:20)

• Clinic feedback

6)     Action Items (6:20 – 6:30) (Richard)

7)      Next meeting: Wednesday, January 15, 2014, 5:00pm – 7:00pm

To attend this meeting via the new Webex One Touch System:

Join by video and audio by following the link below.

• Attendees should use their computer for video. Connect using a computer that is plugged in and not Wi-Fi.
• Attendees should use their phone for audio not the computer.
•  The reason for the above is that is it takes a lot of power to connect to Wi-Fi and you may be dropped from the call and have to reconnect.
• To enable your camera, click the camera icon next to your name in the WebEx participants list.

VideoConnection:
To join the meeting , go to https://stanfordmedot2eft.webex.com/stanfordmedot2eft/j.php?ED=155136007&UID=0&PW=ccec7b74720d&RT=NCMy

Meeting password: 1234

Meeting number: 340604907

Video address: 7527500@stanfordmed.org
Locations: TP-900 Blake Wilbur-Conf RM W1084

AudioConnection:
Call-in numbers
Toll: +1-415-655-0000
Toll-free: 1-877-668-4488
Access code: 340604907

9-18-13 meeting minutes

Members Present: Laura S.,Ann R.,Brian E.,Richard D.,Angel M., Amber R., Colleen. Minutes taken by Colleen in temporary absence of secretary.

Members Absent: Jackie R., Brian T., Elyse G., Ed K., Jay A.

Guests Present: None

Council Votes: August minutes approved, voted on and adopted.

                         The council voted to NOT hold the December 2013 meeting.

Tasks Assigned: None

Project Updates:

Facebook update from Brian E.: Our page should be functional within 2 weeks! Monitoring of the page was discussed: Meg feels she isn’t able to monitor the page every day. Our Stanford contact Liat Kobza would like our council help with monitoring of the page by checking in on the page daily. Brian T. has already agreed to log in each day. When he is unavailable both Brian and Amber are most generally on line and happy to do so. Additionally, Liat would like all members to login 1-2/week to keep the page “Active”.

CFRDM card update from Laura: The cards are nearly final. When ready, Laura will have them printed.  

Other: Upcoming meeting dates

 November 20, 2013.

(December - the December meeting has been cancelled)

 January 15, 2014.

Action Items : 1. Laura to contact Dr. Mohabir within 2 weeks to discuss the initiation of our clinic vision. Amber and Brian E. will continue thereafter as council’s liaisons to the clinic for ongoing work on the project.

 2. All officers should be prepared to share whether they plan to remain on the council for another term or to resign their position at the November meeting. Council voting on new positions will occur in January.

3. Brian. E will follow up with Liat regarding:

·         What expectations does Liat have of our group when “monitoring” the FaceBook page.

·         What is the course of action should we see something marginal/inappropriate.

·         Check if council can be granted “administrator rights” (Brian E and Amber R.

are both willing to become administrators)

Closed session was held; discussion of ACFAC document synthesizing large strategic goals/vision with specific tactical ideas and tasks.

Meeting called to a close at 6:05pm.

Next meeting: October 16, 2013

9-22-13 ACFAC Agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, Sept 18, 2013, 5:00pm-7:00pm 

Location: Blake Wilbur Conference Room & Webex

Open Session

1)      Introductions & meeting guidelines (5:00 – 5:05)

·         Temporary secretary (Colleen)

2)    Adopt August minutes (5:05 – 5:10)

·         Review minutes at http://cfacmeetings.blogspot.com/2013/09/8-21-13-meeting-minutes.html

3)    ACFAC / CF Center partnership projects (5:10 – 5:20)

·         Current project: “Supporting newly-diagnosed CFRD adults”

·         Facebook page: update from FB developer and launch date (Brian E.)

4)    Quick Updates (5:20 – 5:35)

·         November-January meeting calendar (Laura)

Closed session

5)    ACFAC vision project (5:35 – 6:20)

·         Review document at https://docs.google.com/file/d/0B7WrtjnOi5wMOGVYZFhCWjBlOW8/edit?usp=sharing 

6)    Readout of Action Items (6:20 – 6:30) (Richard)

7)      Next meeting: Wednesday, October 16, 5:00pm-7:00pm

To attend this meeting via Webex:

Topic: CF Meeting -September 2013
Date: Wednesday, September 18, 2013
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 804 897 694
Meeting Password: Wel2010come


-------------------------------------------------------
To join the online meeting (Now from mobile devices!)
-------------------------------------------------------
1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106657&UID=1409876682&PW=NNmI3M2QyM2Y3&RT=MiM0
2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: Wel2010come
4. Click "Join".

To view in other time zones or languages, please click the link: https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106657&UID=1409876682&PW=NNmI3M2QyM2Y3&ORT=MiM0

-------------------------------------------------------
To join the audio conference only
-------------------------------------------------------
To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code.
Call-in toll-free number (US/Canada): 1-877-668-4493
Call-in toll number (US/Canada): 1-650-479-3208
Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?serviceType=MC&ED=210106657&tollFree=1
Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf

Access code:804 897 694

-------------------------------------------------------
For assistance
-------------------------------------------------------
1. Go to https://stanfordmed.webex.com/stanfordmed/mc
2. On the left navigation bar, click "Support". 

8-21-13 Meeting Minutes

ACFAC Meeting Minutes – August 21st, 2013               

Members Present: Ann, Jackie, Ed, Laura, Amber, Elyse, Angel, Brian E., Colleen, Brian T., Richard, Jay

Guests Present: Karen

Members Absent: N/A

1. July 2013 minutes approved.
2. Laura and Angel spoke with clinic staff regarding the CFRD resource card.  Endocrine dept. recommended adding several websites that patients have found useful.  Lara recommended to not include diabetes educators contact information as they may not have to capacity to handle an influx of calls. It was recommended to include the main endocrine dept. contact number.  In clinic, Kathy and/or Meg would be the most likely to hand out the card.
3. Brian E. has been in contact with web developer for the private Facebook page.   It has been recommended by the developer to initially open it up to all patients, regardless of CFRD status, as that will increase the traffic.  Once page is established, CFRD can be a focus.  The development should take a couple of weeks once the process begins.  Meg will still act as gatekeeper / moderator for the page, and the page would only be able to be accessed once invited via a web link from the moderator.   Council members will take turns checking in to help initially create traffic, and Brian T. has volunteered to be a permanent "commentator" with the goal of keeping interest in the page.
4. Temporary "minute-takers" established, Colleen to take minutes for September and November and Jay to take minutes for October.  They will only be responsible for typing up minutes and sending them to Laura, who has agreed to post to the ACFAC site as well as distribute the email.
5. Closed session held to discuss future council vision and anecdotal research obtained.
6. Next meeting set for Wednesday, September 18^th from 5pm-7pm.

 Action Items

1. Laura: To finalize CFRD resource card and present for final feedback
2. Brian E.: To notify all council members when CFRD Facebook page goes live
3. All: Review data and vision plan to prepare for email train

8-21-13 Agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, July 17, 2013, 5:00pm-7:00pm 

Location: Blake Wilbur Conference Room & Webex

Open Session

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Adopt July minutes (5:05 – 5:10)

·         Read minutes at  http://cfacmeetings.blogspot.com/2013/08/acfac-7-17-13-meeting-minutes.html

3.      ACFAC / CF Center partnership projects (5:10 – 5:40)

Current project: “Supporting newly-diagnosed CFRD adults”

·                CFRD resource card: feedback from endocrine team and CF nutritionist (Angel, Laura)

·                Social Media/FB page: update from FB developer; process for page invitation/access (Brian E.)

4.      Quick Updates (5:40 – 5:55)

·         Temp secretary assignments (Jackie)

Closed session

5.      ACFAC goals (6:00 – 6:40)

·         Anecdotal research from patients and clinics; read  https://docs.google.com/file/d/0B7WrtjnOi5wMRjA2ZmpWRlFwWDA/edit?usp=sharing (Amber and Angel)

·         Potential council vision/plan; read  https://docs.google.com/file/d/0B7WrtjnOi5wMMVBORmlnSmhBQlE/edit?usp=sharing (Brian E. and Laura)

6.      Readout of Action Items (6:40 – 6:45) (Richard)

7.      Next meeting: Wednesday, September 18, 5:00pm-7:00pm

#######

To attend this meeting via Webex:

Topic: CF Meeting- August 2013 
Date: Wednesday, August 21, 2013 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 809 236 000 
Meeting Password: Wel2010come 


------------------------------------------------------- 
To join the online meeting (Now from mobile devices!) 
------------------------------------------------------- 
1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&PW=NN
DdhZjM5NTE5&RT=MiM0 
2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: Wel2010come 
4. Click "Join". 

To view in other time zones or languages, please click the link: 
https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&PW=NNDdhZjM5NT
E5&ORT=MiM0 

------------------------------------------------------- 
To join the audio conference only 
------------------------------------------------------- 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?service
Type=MC&ED=210106587&tollFree=1 
Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf 

Access code:809 236 000 

------------------------------------------------------- 
For assistance 
------------------------------------------------------- 
1. Go to https://stanfordmed.webex.com/stanfordmed/mc 
2. On the left navigation bar, click "Support". 

You can contact me at: 
erwilliams@stanfordmed.org 

To add this meeting to your calendar program (for example Microsoft Outlook), click this link: 
https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106587&UID=1409875937&ICS=MI&LD=1&RD
=2&ST=1&SHA2=AAAAAljvnJmx7P2uXdqUtNDYmIXfyvFoOn17I3XdLzoEDGrS&RT=MiM0 

The playback of UCF (Universal Communications Format) rich media files requires 
appropriate players. To view this type of rich media files in the meeting, please check whether you have the players installed on your computer by going to https://stanfordmed.we
bex.com/stanfordmed/systemdiagnosis.php. 

ACFAC 7-17-13 Meeting Minutes

Members Present: Angel, Brian E., Elyse, Laura, Jay, Ann, Jackie, Richard, Amber, Ed

Guests Present: Sarnjit, Karrie

Members Absent: Brian T., Colleen

1. June 2013 minutes approved.
2. Discussion held regarding the pocket-sized information card for the CFRD project.  Recommendations included to allow space for notes and to make it business card size and possibly double sided. 
3. Brian E. spoke with Meg regarding the CFRD private Facebook page, and the recommendations from the council from the May meeting.  Brian's goal is to speak directly with the web developer who is the person in charge of designing and implementing the page.  
4. Richard is working on paragraph for CFRD private Facebook page, may need to be reworded depending on the purpose of the paragraph and who it can be view by (i.e. people who are already members of the page, or anyone looking to join the page)
5. Elyse provided an update of the Peer2Peer program with no major changes to report.  Plans are in the works for another training session and additional mentors are needed, timeline and specifics to follow.
6. Jackie is still looking for a volunteer minutes-taker for October.
7. Closed session held to discuss future council goals/direction.
8. Next meeting set for Wednesday, August 21^st from 5pm-7pm.

 Action Items

1. Laura: To adjust/change the CFRD information card / bookmark
2. Brian E.: To get in contact with website developer for private CFRD Facebook page, and to address logistics of how patients will be invited to the page
3. All: To get in contact with other CF patients to get information about how other CF clinics are organized. Report findings to Angel and Amber who will synthesize for next meeting.
4. Angel and Laura: To ask endocrine clinic feedback on CFRD resource card.

 

 

7-17-2013 agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, July 17, 2013, 5:00pm-7:00pm 

Location: Blake Wilbur Conference Room & Webex

Open Session

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Adopt June minutes (5:05 – 5:10)

Read minutes at http://cfacmeetings.blogspot.com/2013/07/acfac-6-19-13-meeting-minutes.html

3.      ACFAC / CF Center partnership projects (5:10 – 5:40)

Current project: “Supporting newly-diagnosed CFRD adults”

Presentation of projects for council input:

a.       Resource Card: review document at 

https://docs.google.com/file/d/0B7WrtjnOi5wMUWlibnJoNmRDdWM/edit?usp=sharing (Ed, Laura)

b.      Social Media/FB page:

·   URL, site, design (Brian E.)

·   Text: review document at https://docs.google.com/file/d/0B7WrtjnOi5wMeGxLQUxwMmpiaFU/edit?usp=sharing (Richard)

4.      Quick Updates (5:40 – 5:55)

Peer2Peer program status (Elyse)

Council Projects page on website (Jay)

Temp Secretarial roles (Jackie)

Closed session

5.   ACFAC goals (6:00 – 6:40)

Council members: ideas and brainstorming for our next direction

6.   Readout of Action Items (6:40 – 6:45) (Richard)

7.   Next meeting: Wednesday, August 21, 5:00pm-7:00pm

#########

Topic: CF Meeting-July 2013 

Date: Wednesday, July 17, 2013 

Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 

Meeting Number: 808 730 533 

Meeting Password: Wel2010come 

------------------------------------------------------- 

To join the online meeting (Now from mobile devices!) 

------------------------------------------------------- 

1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106172&UID=1409874582&PW=NY

jI5ZGM0ZmY5&RT=MiM0 

2. If requested, enter your name and email address. 

3. If a password is required, enter the meeting password: Wel2010come 

4. Click "Join". 

To view in other time zones or languages, please click the link: 

https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106172&UID=1409874582&PW=NYjI5ZGM0Zm

Y5&ORT=MiM0 

------------------------------------------------------- 

To join the audio conference only 

------------------------------------------------------- 

To receive a call back, provide your phone number when you join the meeting, or call the 

number below and enter the access code. 

Call-in toll-free number (US/Canada): 1-877-668-4493 

Call-in toll number (US/Canada): 1-650-479-3208 

Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?service

Type=MC&ED=210106172&tollFree=1 

Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf 

Access code:808 730 533 

------------------------------------------------------- 

For assistance 

------------------------------------------------------- 

1. Go to https://stanfordmed.webex.com/stanfordmed/mc 

2. On the left navigation bar, click "Support". 

You can contact me at: 

erwilliams@stanfordmed.org 

To add this meeting to your calendar program (for example Microsoft Outlook), click this 

link: 

https://stanfordmed.webex.com/stanfordmed/j.php?ED=210106172&UID=1409874582&ICS=MI&LD=1&RD

=2&ST=1&SHA2=AAAAAnD2utUPE9csudJ5ah7GVT7z5OkupRC6WamsaE7nfyi5&RT=MiM0 

The playback of UCF (Universal Communications Format) rich media files requires 

appropriate players. To view this type of rich media files in the meeting, please check 

whether you have the players installed on your computer by going to https://stanfordmed.we

bex.com/stanfordmed/systemdiagnosis.php.