7-18-2012 ACFAC Meeting Minutes

ACFAC Meeting Minutes – July 18^th, 2012                     

 

Members Present: Laura, Lauren, Colleen, Ed, Kriss, Elyse, Ann, Jackie

 

Members Absent: Eric M., Jay

 

Guests Present: Zoe, Eric W.

 

1. June minutes approved.
2. Information provided regarding the content of the mandatory hospital orientation for volunteers.  Lauren was able to attend the June orientation, and reported that the orientation was helpful in understanding how the ACFAC fits into the hospital and its goals.  It provided information relevant and practical to the patient advisory councils.
3. The next volunteer orientation will be held in the Blake Wilbur conference room, the room in which the ACFAC meetings are held.  Since the orientation is 4 hours long, it will be split up into 2 sessions, the first being Wed August 15^th from 5-7p and the second being August 29^th from 5-7p.
4. It was brought up that current new patients to the Adult CF clinic receive a new patient folder, and in that folder is an old and outdated brochure about the ACFAC.  Currently, there is no contact information.  The council discussed and agreed upon replacing the brochure with the ACFAC flyer and business card. It was also agreed upon by the council to request that the clinic remove the brochure from any other areas it is being used, as it is outdated.
5. Lauren provided an update regarding the Peer2Peer mentoring program.  The launch date is slated for September 1^st , 2012 and it will commence with the training of the mentors.  By this date, the goal is to have the specifics known such as WebEx capabilities, time commitment, mentor responsibilities and these will be discussed with the prospective mentors in the training sessions.  Also discussed is that while Meg will be the person matching mentors/mentees, that the supervising social worker for the program will not be affiliated with the CF center.
6. Elyse has been in contact with Cathy H. to continue to provide updates regarding the ACFAC via the CF Center at Stanford's Facebook page.  The goal will be to start using Facebook to increase awareness of the council and it's programs, such as the Perr2Peer Program, meetings, accomplishments, etc. 
7. Kriss was able to discuss with CFRI the possibility of either having a table, or using the CFRI table to increase awareness of the ACFAC.  It was voted on by the council to use the CFRI table instead of our own table.  The council will provide flyers and business cards for "take-aways."  ACFAC members attending the council will also have "Ask Me" buttons
8. It was discussed for future events, to hold a small drawing or raffle, or ask participants of these events to provide the council with contact information, such as email or phone number to improve outreach and awareness of the ACFAC in the CF community, especially those that are patients or family members of patients at Stanford.
9. Discussion also held regarding ideas for further goals and projects for the council.  Ideas included: Sponsoring events (forums, talks) or items at clinic (such as the cups for coffee / water, pen/pad of paper to ask questions) to increase the awareness of the ACFAC.  The council discussed the list that had been compiled when the council was formed and determined that many of the "goals" had been accomplished.  Discussion of council goals and projects to continue at the September meeting.
10. Discussion held regarding the opening for the vice-chairperson position.  Current members to think about the position and discussion regarding election to be held at September meeting.  Kriss agreed to continue as a voting member and Vice Chairperson until September 1^st.    After that, Kriss offered and council agreed that she will stay on as an advisor/graphic designer.
11. It was voted on and approved to have an "offline" or internet vote should new member applications be received as the August meeting will be for the orientation.
12. Jay was unable to attend the last pediatric council meeting.
13. Next meeting set for Wednesday, August 15th 2012.  Since it will be the orientation, those who have attended the orientation or are excused from it are excused from the meeting.

 

July Action items:

 

1. Kriss: Send first newsletter blurb as an example to Jackie
2. Jackie: Send blurb to Zoe for newsletter by July 27th
3. Laura: Remember for the next agenda to include council marketing brainstorming "something you can use"
4. Kriss: Notify CFRI of council wishes at CFRI table with flyers and business cards (note tablets?)
5. Kriss: Design a 1/4 page tablet design to send to Laura for CFRI retreat
Laura to get 1/4 page tablets printed, give to Kriss at conference
Kriss to bring tablets to retreat
6. CFRI conference needs: 100 flyers, 50 business cards
Kriss to make sure Laura has everything she needs to get these printed
Laura to ensure these flyers and business cards are printed by the CFRI conference
Kriss to bring whatever is left over to CFRI retreat
7. Elyse: Announce mentor program on Facebook
8. Ed: Ask Kathy Gesley to remove brochures from new patient folder and to put council flyer in folder instead. Also ask Kathy to remove council brochure from everywhere
9. Eric Williams: Reserve our conference room for August 29th
10. Laura: Notify Joan of potential cross-infection between CF patients and other populations for orientation meetings' invited guests
11. ALL: An internet vote was approved for a new member application. Please expect this vote and respond to it.
12. Laura: Review council bylaws and email policy
13. Jackie: Move Kriss' contact info on the council directory to the advisor section

 

 

 

 

7-18-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, July 18, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed.

COUNCIL BUSINESS

1.   Adopt last month's minutes (5:05-5:10)

-    Review June minutes at http://cfacmeetings.blogspot.com/2012/06/acfac-june-20th-2012-meeting-minutes.html

2.      PAC volunteer orientation (5:10-5:20)

-     Lauren to report on her experience from June orientation session

-     Laura to provide information for upcoming August sessions

3.   Clinic operations (5:20-5:30)

4.   Peer2Peer Program (5:30 - 5:40)

-     Lauren to provide update: mentor training plans; data collection; next steps

5.   ACFAC direction and goals Part II (5:40 - 6:25)

Followup from June brainstorming session: refer to June minutes (link above): "Where do we go next? What do we champion now? What are our priorities?"

·         Social networking: Elyse to provide Facebook update

·         CFRI conference/retreat: Kriss to report on ACFAC table; discuss printing budget from Eric W; review business card design, see file at  https://docs.google.com/file/d/0B7WrtjnOi5wMNDEzNTM5Y2ItMmQ4Yi00ZTZlLWExY2UtODI1MTA4MWEwMW Vl/edit?hl=en&authkey=CKGJ59YO; ‘Ask Me’ button, see file at https://docs.google.com/open?id=0B7WrtjnOi5wMYjctalEyY3V6bGc

·         CF center newsletter: Eric M to report on ACFAC blurb

·         ACFAC projects: review Norma’s original list for discussion and articulate goals for the year; see https://docs.google.com/open?id=0B7WrtjnOi5wMcGR0bkdoWmQzY2c

6.   Council membership (6:25 - 6:35)

-     Nominations for new Vice Chair

7.   Quick updates and check-ins (6:35 - 6:45)

-     Pediatric council

8.   Action items (6:45-6:50) 

9.   Set date/time for next meeting: Wednesday, August 15, 5:00pm-7:00pm

 -------------------------

Webex:

Topic: CF Mtg - July 
Date: Wednesday, July 18, 2012 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 803 784 942 
Meeting Password: july 

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6-20-2012 Meeting Minutes

June 20^th, 2012 ACFAC Meeting Minutes

Members Present:  Colleen, Ann, Ed, Elyse, Eric M., Kriss, Erika, Jackie

Guests Present:  Rosie, Zoe

Members Absent:  Lauren, Laura, Jay

1. May meeting minutes approved.
2. The mandatory Stanford Hospital volunteer orientation sessions as follows: June 22^nd, 2012 from 1p-5p and June 28^th , 2012 from 530p to 930p.   The orientations will be held in the nursing administration conference room, H0105, ground floor.  Please let Laura or Kriss know if you will be attending.  There was a question if the meetings will be available via WebEx, Kriss or Laura to follow up regarding that issue, as well as any repercussions if a member cannot attend either session.
3. Update regarding the Peer2Peer program:  Lauren still working with Joan for the initial training and set-up of the program.  More information to come at next month's meeting. 
4. Discussion held regarding the ACFAC direction and goals, with focus this month on outreach to the Stanford Adult CF community.  Ideas included: focusing more on "word of mouth", instead of mailers or written communication; use of social networking, specifically, Facebook; including information in the Stanford CF newsletter; using business cards; holding an event to raise awareness; inquiring about having a table at CF-related events in the area, CFRI, for example; and drawing people in by increasing awareness about current council projects. The council decided to begin with using Facebook, Elyse will work with Cathy H. to routinely use the Stanford CF Center Facebook page to provide information about the council.  Information to be provided includes announcing the meeting date / time, and a description of the council to increase awareness.  Members encouraged to brainstorm for next month about goals and projects for the council.
5. The council also discussed methods of outreach and communication that have been successful in the past.  Some members felt the "town hall" style meeting that was held was not successful, in that few from the CF community attended, but helpful to those who did attend.  Also discussed was revisiting the quarterly feedback meetings with clinic staff, however, it was decided that the council currently does not have feedback to provide.  Also discussed was the time of the meetings and whether or not this limits people from being able to attend.  However, it was also discussed that holding the meeting earlier or later would reduce the ability of clinic staff to attend the meetings.
6. The new member application for this month was not received, voting will be postponed until next month.  Reminder provided that voting on new members is held in a closed session, usually at the beginning of the meeting. 
7. Kriss announced her resignation effective after the July 2012 meeting, Erica announced her resignation effective after the June meeting.  Discussion to be held next month regarding the vice chairperson vacancy.  Also discussed was that the bylaws state the minimum number of members must be 9, at the end of the July meeting, the council will be at this minimum. 
8. No discussion regarding clinic operations.
9. Reminders:   The CFRI conference will be held July 27^{th ,} 2012 thru July 29^th, , 2012.  For more information, please visit http://www.cfri.org/formconfreg2012.shtml.  The CFRI retreat will be held July 29^th, 2012 thru August 5^th , 2012.  For more information, please visit http://www.cfri.org/2012Retreat.shtml
10. Next meeting: Wednesday, July 18^th, 2012 5p – 7p.

June Action Items

1. All:  Please consider "Like-ing" the Stanford CF Center page on Facebook
2. All:  Brainstorm ideas for new projects, new goals and continued outreach
3. All: Please let Laura / Kriss know if you will be attending the hospital volunteer orientation.
4. Elyse to contact Laura regarding the WebEx links for the ACFAC meetings to post on the Stanford CF Center Facebook page
5. Kriss to forward a "blurb" to Elyse about the ACFAC description to include on the Stanford CF Center Facebook page
6. Laura / Kriss to continue to try and get more information on the Stanford hospital volunteer orientation dates / times, and WebEx availability
7. Kriss to investigate getting buttons for the members of the council who will be attending the CFRI conference / retreat
8. Eric M to write short "blurb" for the upcoming Stanford CF Center newsletter.  This can be presented / discussed at next meeting for final approval

5-16-2012 Meeting Minutes

ACFAC Meeting Minutes – May 16^th, 2012                     

 

Members Present: Kriss, Laura, Erika, Colleen, Ed, Jay, Lauren, Elyse, Ann, Jackie

 

Members Absent: Eric M.

 

Guests Present: Kathy, Rosie, Zoe

 

1. April minutes approved.
2. Discussion was held regarding how the Stanford Patient Advisory Council (PAC) can help our council to resolve difficult issues, and that if the ACFAC has an issue that cannot be resolved, the Stanford PAC is available as a resource.  The council decided to add an agenda item entitled "Clinic Operations" to allow comments, concerns, etc. to be addressed in the presence of clinic staff, yet retain anonymity.  Council members that would like a comment, concern, etc. brought to the council anonymously can send it to the chairperson to put under this agenda item  
3. Members of the ACFAC are considered volunteers of the hospital.  As a result, members are asked to attend the hospital orientation for volunteers.  There will be two days this is held with various times.  Laura will pass along the specifics as she receives them. 
4. Members have been contacting Lauren regarding being mentors for the Peer2Peer program.  Any further questions or interest should be directed to Lauren.  The program is slated to begin with the training sessions in June/July and more information to follow.  Current members who are interested in becoming mentors are Lauren, Laura, Jay, Elyse and Kriss.  News of the program was also included in the CF center newsletter.
5. Kriss has updated the ACFAC resource page with the new bylaws and the new flyer.  The correct flyer is now on the ACFAC tab on the Stanford CF center website. 
6. Most of the CF team members have completed the "Get to know your team" questionnaire.  One more email invitation to fill out the questionnaire will be sent to the remaining members.
7. Discussion held regarding the council's direction and goals for the upcoming year.  The plan for next month will be to discuss outreach more in-depth, once members have the opportunity to think of ideas. The plan for July will be to set council goals and direction.
8. The next meeting is set for Wednesday, June 20^th 5pm to 7pm.

 

May Action Items:

 

1. ALL - Please remember upcoming mandatory orientation for hospital volunteers (which includes all ACFAC members) in late June, and in early July
2. Laura - Add PAC discussion or clinic operation discussion agenda item early in upcoming agendas
3. Lauren - Add Elyse and Jay to her mentor list
4. ALL - Brainstorm ideas for setting council goals for our July meeting
5. ALL - Brainstorm ideas for council outreach for our June meeting
6. Jay - Coordinate with pediatric council to attend some meetings
7. ALL - If you have specific issues with clinic operations, email the chairperson

 

 

 

6-20-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, June 20, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed. Vice Chair to lead meeting.

COUNCIL BUSINESS

1.   Adopt last month's minutes (5:05-5:10)

-    Please review May minutes at http://cfacmeetings.blogspot.com/2012/06/5-16-2012-meeting-minutes.html

2.  PAC happenings (5:10-5:20)

-    Kriss to provide Laura's update:
From Joan Forte: An update on the Patient Partner Volunteer Orientation program:
First session: will be held June 22, from 1p-5p
or
Second session: will be held June 28, 5:30-9:30p
Location: Nursing Administration Conference Room H0105, ground floor (From the gift shop in the main hospital, take the escalator down one floor then follow the overhead signs for "Nursing Admin suite").
RSVP to: Joan Forte

3.   Clinic operations (5:20-5:30)

4.   Peer2Peer Program (5:30 - 5:35)

-   Lauren to provide update: mentor training plans; data collection; next steps

5.   ACFAC direction and goals Part I (5:35 - 6:15)

-    "Where do we go next? What do we champion now? What are our priorities?"

-    Brainstorming on council outreach to larger Stanford CF adult community: how can we get more CF adults to know about our role and our presence? what can we do to get their input and hear their voices? what have we tried in the past (surveys, other) and what has worked or not worked? 

-   Elyse to provide update re council blurbs on CF Center FB page

6.   Council membership (6:15 - 6:35)

-     Colleen to present new member application

-     Kriss to report on officer and member changes

7.   Quick updates and check-ins (6:35 - 6:45)

      -     CFRI conference and retreat:

Conference: July 27th through July 29th, 2012. For more information on CFRI conference: http://www.cfri.org/formconfreg2012.shtml
RetrEAT: July 29th through August 5th, 2012. For more information on CFRI retrEAT: http://www.cfri.org/2012Retreat.shtml

8.   Action items (6:45-6:50) 

-   Read action items. Include brainstorm for July meeting: goal-setting for the year.

9.   Set date/time for next meeting: Wednesday, July 18, 5:00pm-7:00pm

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Webex:

Topic: CF Mtg - June
Date: Wednesday, June 20, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 801 652 157
Meeting Password: june


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5-16-2012 Agenda

5-16-2012 Agenda

 

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, May 16, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed.

COUNCIL BUSINESS

 

1.   Adopt last month's minutes (5:05-5:10)

-    Please review March minutes at http://cfacmeetings.blogspot.com/2012/05/4-18-2012-meeting-minutes.html

2.  Stanford PAC update (5:10-5:55)

Laura to report on April PAC meeting; ACFAC feedback and discussion:

-    PAC role in supporting clinic advisory councils with difficult issues: how they can help us as relates to our "roles & responsibilities" conversation of last month

-    PAC description and expectations: read doc at https://docs.google.com/open?id=0B7WrtjnOi5wMcEJ2UGdjT24tNzA

-    orientation for hospital volunteers

3.   Peer2Peer Program (5:55-6:10)

      Lauren to provide update: mentor selection; training plans; next steps

4.   Quick updates and check-ins (6:10-6:20)

-    Jay: ACFAC resource page updated with new bylaw and flyer links http://cfacmeetings.blogspot.com/p/stanford-acfac-resource-page.html

-    Laura: correct council flyer at http://cfcenter.stanford.edu/acfac/documents/CFAC-flyer-ONE-4-18-2012.pdf

-    Colleen or Dr. Mohabir: status of Get To Know Team questionnaire

6.   ACFAC direction and goals (6:20-6:35)

-    Where do we go next? What do we champion now? What are our priorities? Initiate council discussion.

7.   Council concerns and open discussion period (6:35-6:45)

8.   Action items (6:45-6:50) 

- Kriss to read.

9.   Set date/time for next meeting: Wednesday, June 20, 5:00pm-7:00pm

 

**************************

To attend this meeting via Webex:

 

Topic: CF Mtg-May
Date: Wednesday, May 16, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 807 123 228
Meeting Password: may16

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3. If a password is required, enter the meeting password: may16
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Access code:807 123 228

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4-18-2012 Meeting Minutes

ACFAC Meeting Minutes – April 18^th, 2012

 

Members Present:  Laura, Kriss, Colleen, Ann, Jay, Lauren, Elyse, Erika, Jackie

Members Absent: Ed, Eric M

 

Guests Present: Jocelyn, Kathy, Zoe, Sydney, Rosie, Siri, Joan, Dr. Mohabir

1. January meeting minutes approved, February meeting minutes approved.  Answers were given for Laura's Ed day Quiz.
2.  Presentation from Joan Forte, Director of Patient Care Services, entitled " Partnering with Patients, Patient and Family Centered Care Programs at Stanford."  Please click on link for presentation. https://docs.google.com/viewer?a=v&pid=gmail&attid=0.1&thid=136d50524bf67890&mt=application/vnd.ms-powerpoint&url=https://mail.google.com/mail/?ui%3D2%26ik%3D9ab638220c%26view%3Datt%26th%3D136d50524bf67890%26attid%3D0.1%26disp%3Dsafe%26zw&sig=AHIEtbQZzheWPLxQ3TMciObVOmEY72TOpA&pli=1  Also discussed was the planned roll-out for the CF Mentor / Peer-to-Peer program.  It will begin with a pilot program with 4 volunteer mentors initially.  The pilot will be 6 months.  Further details, such as method of contact, frequency of contact, and a training program for becoming a mentor are still being discussed.  Those council members interested in being a mentor should contact Lauren.
3. The new "We want to hear your voice" flyer has been posted on the ACFAC website.  Laura reported that per Ed, the process on the inpatient side has been fixed, the floor managers are now aware of where the flyers are to be stored.  In addition, the updated bylaws are now posted on the ACFAC website as well.
4. Discussion occurred regarding members providing input and feedback, especially when clinic staff give presentations. 
5. Laura provided several updates and reminders.

a.     Laura attended most recent CORE PAC meeting (Stanford's Advisory Council for patient advisory councils).  Notes included a discussion of the pros / cons of WebEx use, the recent accreditation of Stanford as a MAGNET hospital for nurses, and the implementation of multidisciplinary team rounds.  The council discussed that this appears to be already happening with the CF team, but Laura reports this is one of the hospital-wide goals.

b.     For the "Get to Know the Team" questionnaires, most team members have filled out the responses which are now posted on the Stanford CF Center website under the "Adult" tab (not the Advisory Council Adult tab.)

c.      Laura provided reminder that there are 2 separate tabs on the CF Center Website; the Adult tab and the Advisory Council tab with the drop-down for the Adult Council.  Please be sure to be clear when referring to each in documents and discussions.

Next meeting set for Wednesday, May 16^th from 5-7 pm.

 

April action items:

 

1. Kriss:  Ask Laura to include link to the council flyer on next agenda http://cfcenter.stanford.edu/acfac/documents/CFAC-flyer-ONE-4-18-2012.pdf) reminder that our new member / resource page is is: http://cfacmeetings.blogspot.com/p/stanford-acfac-resource-page.html
2. Jay:  To follow up on website flyer and bylaw links, and the council not showing up under the teen tab
3. Colleen: To touch base with Dr. Mohabir on the "Get to Know the Team" questionnaire progress 
4. Laura: Report to the Core Pac meeting regarding the value of WebEx due to geography
5.  ALL:  Look for agenda topics with staff and prepare individual thoughts
6. ALL:  Consider being a part of the pilot mentor / peer program.  Contact Lauren with questions or if interested in volunteering.

 

 

 

 

 

1.