Monday, March 19, 2012

3-21-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, March 21, 2012
Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS
Introduction of any guests or others as needed.

COUNCIL BUSINESS
1.   Council chairperson ()
b.   Laura's CF Ed Day quiz: answers given and prizes awarded.

2.   CF mentor questionnaire ()
Lauren and Joan (Joan Forte, Director of Patient Care Services) to present roll-out of CF Mentor/Peer-to-Peer program:
- Partnership with hospital and other clinics
- Mentor training, supervision, tracking
(Laura says: you will not want to miss this meeting, this is gonna be amazing!)

3.   "We want to hear your voice" council flyer (
Ed to report finalized process for getting the flyer to inpatients; see flyer (one version only, now) at https://docs.google.com/open?id=0B7WrtjnOi5wMYVJUWHJLaTRRMUNQSUg0cURvQ29yUQ. Kriss to report about flyer on website.

4.   Clinic/patient communication (6:05-6:20)
      Laura to address last month's presentation by Kathy and clinic staff regarding followup paperwork and in writing; our council's role and responsibilities.

5.   Quick updates and check-ins (6:20-6:35)
      - Laura to report on CORE PAC meeting
      - Get to Know Team questionnaires: status update
      - Clarify CF adult tab (http://cfcenter.stanford.edu/adults/) v. ACFAC tab(http://cfcenter.stanford.edu/acfac/

6.   Council concerns and open discussion period (

7.   Action items:
Kriss to read.

8.   Set date/time for next meeting: Wednesday, April 18,

**************************

WebEx info:  

Topic: CF Mtg-March
Date: Wednesday, March 21, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 809 318 427
Meeting Password: march

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To join the online meeting (Now from mobile devices!)
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2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: march
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Access code:809 318 427

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2. On the left navigation bar, click "Support".

Saturday, March 17, 2012

2-15-2012 Meeting Minutes

ACFAC Meeting Minutes  - February 15th, 2012

Members present: Laura, Colleen, Erika, Jay, Kriss, Ann, Ed, Elyse, Jackie

Members Absent: Eric M, Lauren

Guests Present: Rosie, Renatta, Kathy G., Eric W., Dr. Mohabir

1.     Update provided regarding the all-Stanford Advisory Council Meeting.  Laura was put in contact with the organizer of the council meeting.  Laura to get information the location, dates, ect of the meeting and will attend as able.  Others are welcome to attend as well.
2.     The 12th annual Stanford CF Education Day to be held March 3rd from 8:30 am to 3pm.   The ACFAC will have a table in which applications for membership will be available.   The Education Day is open to parents of young children with CF as well as caregivers and adults with CF. Please follow infection control procedures, and those with multi-drug resistant organisms, B. Cepacia and MRSA are asked not to attend.   It is open to those who do not attend the Stanford CF clinic as well.
3.     The ACFAC bylaw revisions were voted on and approved 8-1.
4.     Eric W. spoke with CF clinic coordinator regarding improving communication about required follow-up tests, medications, ect.  It was discussed that it is a hospital requirement and clinic protocol that an end of visit summary is provided upon check out.  It is the printout that includes the medication list as well as any upcoming appointments that have already been entered.  While there is an area for specific recommendations and education, this is not routinely filled out by the mid-level practitioners but can addressed.
5.     The CF Mentor questionnaire was sent to the team for review.  The next step will be for the CF team to evaluate the tool.   More information is to be provided next meeting regarding moving the process forward.
6.     Dr. Mohabir presented the results of the CF Clinic survey.  The survey window was from 11/1 to 1/31 and 16 surveys were received.  The survey looked at the following areas: Ease of getting care, Interactions with staff members, Overall Satisfaction, Team member Satisfaction (by profession).  Overall, the results were positive with a majority of the scores falling in the 4's and 5's (on a 5-point scale with 5 being the highest and 1 being the lowest).  The survey data was pooled by a volunteer and reviewed by Dr. Mohabir and M. Martel, NP.  The plan going forward is to do another 3-month survey with the goal of having 30-35 completed questionnaires.
7.     Several forms are circulating regarding the "We want to hear your voice" flyer.  This flyer includes information about the ACFAC, but is also intended to serve as a way for patients to communicate and provide feedback.   It was discussed that the multiple forms may be causing confusion, and its use / lack of use was discussed. 
8.     The Stanford CF website site now has the "Adult" tab up and running.  Currently on there are the "Get to know your team" questionnaires.  More information to be added based on the brainstorming session held at December meeting regarding topics for the tab.  Colleen to coordinate the supplying of information for the topics in the tab.
9.     The sick call and admission checklists submitted to clinic coordinator.  No recommendations made for changes, and forms to be added to "Adult" tab on Stanford CF center website.
10.  Discussion held regarding the format of the documents submitted.  Please make sure that documents for distribution are saved as .doc or PDF files.
11.  Discussion held regarding confusion of ACFAC tab on the Stanford CF center and the Adult tab on the Stanford CF Center Website.   Improved clarification needed when talking about the 2 tabs, and to keep in mind the different purposes of the tabs.  The ACFAC tab is supposed to contain information related to the council specifically, whereas the Adult tab is a general tab related to Adult topics / concerns for the CF population. 
12.  All anniversary dates received, Jackie to add it to member list and send out contact list to members.

Next meeting set for Wednesday, March 21st 2012 from 5pm to 7pm.

Action Items

1.     Laura will update everyone on the all-Stanford advisory council pre-meeting with Joan Forte, and future meetings with the larger council.
2.     Kriss gives approved bylaw file to Jay for posting on website and she will update where/if appropriate on meeting blog 
3.     Lauren and Dr. Mohabir need to update the council on the mentor questionnaire in March
4.     Laura and Kriss will update council "We Want to Hear Your Voice" flyer pdf so there is only one version and no form at the bottom
5.     Kriss send final "We Want to Hear Your Voice" flyer file to Jay for posting on website and she will update file on meeting blog
6.     ALL members to use .doc or .pdf file format (no .docx) going forward

Sunday, February 12, 2012

2-15-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, February 15, 2012, 5:00pm-7:00pm
Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS
Introduction of any guests or others as needed.

COUNCIL BUSINESS
1.   Council chairperson: Welcome and theme for this month:  What do we champion next?
     - Update on all-Stanford Advisory Council meeting
     - Stanford CF Education Day, March 3

2.   Bylaws revisions: We will vote on the revisions proposed at our January meeting.  Revisions include job description for Website Revision Manager; updated job description for Secretary and for Membership Chair.  Please read revisions and bylaws at https://docs.google.com/open?id=0B7WrtjnOi5wMZTRhNmZjNTktNmVjNi00ODE1LWFlNjEtZjQ2NDA4MzVkNGE5

3.   Clinic/patient communication: Eric W. to present his communication with Kathy regarding providing patients with hard copy information regarding required follow up tests, medications, etc. at the end of each visit. 

4.   CF mentor questionnaire: Lauren to present update on who has reviewed the questionnaire; next steps to launch mentor program; council's role if any.  Please see questionnaire at https://docs.google.com/open?id=0B7WrtjnOi5wMMDEwOTA4OWQtM2ZiNS00YWY1LTljZDYtNmU4YTk0YTcxOTRj

5.   "We want to hear your voice" inpatient form: Ed to report from inpatient inquiry and Eric W. to report from admin inquiry: process for getting form to and from the B3/C3 inpatients; nurse manager to whom inpatients give the form.  Please see form at  https://docs.google.com/open?id=0B7WrtjnOi5wMNzhjYmU5M2ItYTI2Yi00ODljLWJhZGUtMDg5Y2JmZTIxOWYz

6.   Adult CF website tabs: Colleen/Kriss to report on Sick Call and Admission checklists: input received from clinic staff.  Please see checklists at https://docs.google.com/open?id=0B7WrtjnOi5wMZGIxN2MwMjUtMjk3NS00ZWUxLWI5MDUtMTU2YzAzMDY0YjUw and https://docs.google.com/open?id=0B7WrtjnOi5wMZmM0ODU3YTMtMGE1Zi00N2E4LWIxOGYtNWQwOGI2ZTM5NWY0

7.   "Get to know the team" questionnaire: Colleen/Kriss have gathered responses; please see at https://docs.google.com/open?id=0B7WrtjnOi5wMODI0YzUzYzktODllNy00MDYxLTg2MmYtZTM3YmJmZmQ2MWRj


8.   Council concerns and open discussion period

9.   Set date/time for next meeting: Wednesday, March 21, 2012, 5:00pm-7:00pm

***********************

WebEx:

Topic: CF Mtg - February 
Date:
Wednesday, February 15, 2012 
Time:
, Pacific Standard Time (San Francisco, GMT-08:00) 
Meeting Number: 807 595 212 
Meeting Password: february 


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To join the online meeting (Now from mobile devices!) 
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1. Go to 
https://stanfordmed.webex.com/stanfordmed/j.php?ED=166142647&UID=1232005712&PW=NOD g1ODM2MTNk&RT=MiM0 
2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: february 
4. Click "Join". 

To view in other time zones or languages, please click the link: 
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Call-in toll number (US/Canada): +1-408-600-3600 
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Access code:807 595 212 

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# # #

Thursday, February 2, 2012

1-18-2012 Meeting Minutes

CF Adult Advisory Council Meeting Minutes 1/18/2012

 

Present

 

Council Members:  Colleen, Jay , Ed, Lauren , Laura , Erika , Ann , Kriss , Jackie  

 

Guests: Zoe

 

Absent: Elyse, Eric

 

Council Business

 

1.     Members encouraged to participate actively in council such as reading agenda and coming prepared to meetings.  Council membership roster to be updated.

2.     - Elections held for the following officer roles: Secretary, Membership Chairperson, Vice Chairperson and Chairperson.  The responsibilities of each role were described and the council voted in new officers as follows: Jackie  elected to Secretary role, Colleen re-elected to Membership Chairperson, Kriss elected to Vice Chairperson, and Laura elected to Chairperson.   

- Council discussion regarding process once the 2-year term is up for general membership.  It was decided by the council to add responsibilities to secretary and membership chairperson roles with wording to be approved at next meeting in which by-laws are approved.

- It was voted on by the council to add a new officer role, Website Revision Manager.  Jay elected to this position and responsibilities will be added to bylaws and voted on for approval at next council meeting.

3.     Eric W. still in process of working with clinic to improve communication and provide hard copies of requested follow-up.  Details to be shared at next council meeting.

4.     The council was asked to provide feedback to the pediatric advisory council regarding the transitional process from the pediatric clinic to the adult clinic.  A brainstorming session was held, the information will be organized by Colleen and provided at next meeting, then submitted to the pediatric advisory council.

5.     The council discussed the 2 checklists to be put on the tabs on the Adult CF Website.  Discussion was held to modify content.  The "Sick Call How-To" will be sent to the clinic nurse for further review and the "Hospital Admission Packing List" to be further clarified. 

6.     Colleen / Laura received response from 3 clinic team members on the "Get To Know the Team" questionnaire.   After council discussion, the responses will be added to the next agenda,  more team members will been encouraged to fill out questionnaire for submission to the Adult CF Website.

7.     Lauren to email the completed CF Mentor Survey to Dr. Mohabir to approve and forward to Meg. 

 

Open Discussion / New Business

1.     We want to hear your voice flyers no longer available on the unit and difficult to find in clinic.  Ed and Laura to contact Eric W. to determine contact person on inpatient unit and ensure no modification needs to be made to the form given new management .

2.     Stanford holds an advisory council meeting for advisory councils.  Laura to provide information at next meeting regarding date / time of meeting so that interested members can attend. 

3.     Discussion held regarding updating of the council website.  Wording will be added to Website Revision Manager role to include this as a responsibility to ensure that the website is up to date.

 

Next council meeting set for Wednesday, February 15th, 5-7 pm.

 

 

           

           

           

 

 

Monday, January 16, 2012

1-18-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, January 18, 2012, 5:00pm-7:00pm
Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS
Introduction of any guests or others as needed.

COUNCIL BUSINESS
  1. Council chairperson: Interim Chair Laura - Welcome and theme for this month: Our council needs active membership and leadership in order to continue to exist. Updated membership roster to be sent.
  2. January elections: All officer positions are up for election; for each position, we will either re-elect the existing officer or elect a new person. Membership Chairperson, Secretary, Vice Chairperson, Chairperson.  ACFAC website bios to be updated after elections.
  3. Clinic/patient communication: Eric W. to present his communication with Kathy regarding providing patients with hard copy information regarding required follow up tests, medications, etc. at the end of each visit.
  4. Pediatric transition brochure: Pediatric Council seeks our input on ideas to support CF patients in transition from peds to adult clinic, such as what we would liked to have known before we transitioned; location of clinic; members of the team; wisdom to ease the new patient's transition. Colleen to lead discussion and brainstorming on this topic for a brochure being created by Peds Council.
  5. Adult CF website tabs: Kriss to present checklists for adult CF tabs, including Sick Call How-To and Hospital Admissions Packing List. See documents at  https://docs.google.com/open?id=0B7WrtjnOi5wMY2RmMDY4Y2UtMzVhNC00YTA0LTljZDMtZjQ2MWFmNjJmOWVi
    and  https://docs.google.com/open?id=0B7WrtjnOi5wMYjlhMmNlOWItOTdiZC00ZDgyLTgyZDctMDc1ZTk0MmMwMDgx   Check in with Colleen re written sections of website tabs.
  6. "Get to Know the Team" questionnaire: Colleen to present update on responses
  7. CF Mentor Survey: Lauren to present update. See document at https://docs.google.com/open?id=0B7WrtjnOi5wMNmUwNDg3OTMtMzE2Yi00Y2M1LWIzZDYtOWJlZDI0ZjY5ODJl
  8. Council concerns and open discussion period
  9. Set date/time for next meeting: Wednesday, February 15, 2012, 5:00pm-7:00pm
  10. -------------------------------------------------------
    To attend this meeting via WebEx:  Topic: CF Mtg - January  Date: Wednesday, January 18, 2012  Time: , Pacific Standard Time (San Francisco, GMT-08:00)  Meeting Number: 803 923 933  Meeting Password: january  -------------------------------------------------------  To join the online meeting (Now from mobile devices!)  -------------------------------------------------------  1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=166141867&UID=1232004717&PW=NMz A5Zjg0NTA5&RT=MiM0  2. If requested, enter your name and email address.  3. If a password is required, enter the meeting password: january  4. Click "Join".  To view in other time zones or languages, please click the link: https://stanfordmed.webex.com/stanfordmed/j.php?ED=166141867&UID=1232004717&PW=NMz A5Zjg0NTA5&ORT=MiM0  -------------------------------------------------------  To join the audio conference only  -------------------------------------------------------  To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code.  Call-in toll-free number (US/Canada): 1-877-668-4493  Call-in toll number (US/Canada): +1-408-600-3600  Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?serviceType=MC&ED=166141867 &tollFree=1  Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf  Access code:803 923 933  -------------------------------------------------------  For assistance  -------------------------------------------------------  1. Go to https://stanfordmed.webex.com/stanfordmed/mc  2. On the left navigation bar, click "Support

Thursday, December 15, 2011

12-21-2011 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross-infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

  
The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, December 21, 2011, 5:00pm-7:00pm
Location: none
Note: this is an informational agenda; we are not holding a meeting.


INTRODUCTORY REMARKS

Note: this is an informational agenda; we are not holding a meeting.  Please read the agenda. 

COUNCIL BUSINESS

1.   Council chairperson: Interim Chair Laura - Welcome & happy holidays. Now keep reading! 

2.   January elections:  All officers, please think if you wish to remain in your position.  All members, please review the officer roles in the council bylaws, and give serious thought about which roles you may be able to fill.  Our council needs active membership and leadership in order to continue to exist.   

3.   CF center website (http://cfcenter.stanford.edu):
·          "Get To Know the Team" questionnaire:  Colleen has distributed the questionnaire to the CF team; Lara and Meg have responded. 
·          Adult CF center website tab:  Colleen has collated the ideas from our brainstorming session, and noted individuals who might be able to write each section; review the document at https://docs.google.com/open?id=0B7WrtjnOi5wMNzE2YjQ2ZjQtMzllYy00MjM1LThiOTMtMmEwZmQ3YTU4NDg1


4.   Mentor program: Lauren has revised and updated the mentor questionnaire for potential mentors; review the document at https://docs.google.com/open?id=0B7WrtjnOi5wMNmUwNDg3OTMtMzE2Yi00Y2M1LWIzZDYtOWJlZDI0ZjY5ODJl

5.   Clinic communication:  Eric W. has contacted Kathy regarding providing patients with hard copy information regarding what follow up tests, medications, etc. are required at the end of each visit. He will present this information at the January meeting.

6.    Set date/time for next meeting: January 18, 2012 , Wednesday at 5pm

To attend this meeting via WebEx:
Note: this is an informational agenda; we are not holding a December meeting.  Please read the above agenda to prepare for January's meeting.

Monday, December 5, 2011

November 2011 Minutes



11-16-2011 Minutes

  • Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. If you would like to attend via teleconferencing, please contact Erika Harrington mrs.harrington@sbcglobal.net (the current Advisory Council secretary). She will let you know how you can participate. (Web conferencing/Skype not yet available.)

CF Advisory Council Meeting Minutes 9/21/2011


Present:


Council Members: Colleen Dunn, Laura Steuer, Ann Robinson, Kriss Benson, Erika Harrington, Lauren Caltron, Jay Archibald, Eric Marten, Ed Kinney.


Guests: Zoe Davies, Dr. Paul Mohabir, Siri Vaeth (member of the CF Parent Advisory Council)


Absent: Lizeth Haber, Dave Cartnal, Jackie Rotier, Elyse Elconin-Goldberg


Introductory Remarks:


  • All council me


Council Business:


  1. From the Pedia



CF Advisory Council Meeting Minutes 11-16-11


Present:


Council Members: Colleen Dunn, Ann Robinson, Kriss Benson, Erika Harrington, Laura Steuer, Ed Kinney, Eric Marten, Jay Archibald, Lauren Caltron, Elyse Elconin-Goldberg, Jackie Rotier.


Guests: Arthur Yang, Zoe Davies, Dr. Paul Mohabir


Absent: Lizeth Haber


Introductory Remarks:


  • All council members introduced themselves for the benefit of those using remote attendance methods.

  • Guests introduced themselves.

  • Minutes from the previous meeting were approved.


Council Business:


  1. Kriss Benson has stepped down as Council Chairperson. Tonight's meeting will be her last as Chair. Laura Steuer volunteered and was voted in as our temporary Chairperson through February. Kriss will co-chair to assist Laura as she learns this position.

  2. Conversation about filling council officer positions, office responsibilities, and filling vacant spots before our January election were talked about briefly. Some council members showed possible interest in officer positions that will be available in February. All members have been asked to read the bylaws before our January meeting to get a better idea of what each role is in charge of.

  3. ACFAC Website: http://cfcenter.stanford.edu/acfac/ Update 2: "Get to Know the Stanford Adult CF Team" questionnaire CF Team response (deadline requested was October 10th).

  4. Add a new Adult tab on the CF center website?
    Review:
    http://cfcenter.stanford.edu
    Suggestions for what would be in this new Adult tab:
    a.
    note from last meeting: "How adult CF clinic works"
    b.
    note from last meeting: "Your Adult Doctor Choices"
    c.
    note from last meeting: "How To Call In Sick"
    d.
    note from last meeting: adult mentor program page or blurb
    e. discussion of
    each council member's brainstorming on this topic

    -Each member made their suggestions. Colleen sent out an e-mail listing all of the ideas the members came up with.

  5. Mentor Program discussion and suggestions
    - form for potential mentors (
    review file: coming soon) Laura will send the mentor questionnaireto Dr. Mohabir to review with Meg Devorak.

  6. Council concerns and open discussion period:

    -Lauren and Kriss will prepare "What to bring to the hospital" list for the adult CF website tab and give to Colleen.

    -Laura will connect with Eric Williams regarding WebEx info for January 2012 meeting.

    -Eric will look into the issue of unified communication from the clinic: who writes up all the info from the varied team members after an app't to give to the patient?

    -Reminder: All members need to send the Chair a copy of any presentations to be made at subsequent meeting (powerpoint, visuals, forms to be passed out, etc) for inclusion in Agenda for Webex viewers.

  7. Please note: Adult CF Support Group is on 12/2 with a new start time at 11:30am (new 1.5 hour meetings)

  8. The council will NOT have a council meeting in December. Instead an update will be sent to everyone via e-mail.