7-18-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, July 18, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed.

COUNCIL BUSINESS

1.   Adopt last month's minutes (5:05-5:10)

-    Review June minutes at http://cfacmeetings.blogspot.com/2012/06/acfac-june-20th-2012-meeting-minutes.html

2.      PAC volunteer orientation (5:10-5:20)

-     Lauren to report on her experience from June orientation session

-     Laura to provide information for upcoming August sessions

3.   Clinic operations (5:20-5:30)

4.   Peer2Peer Program (5:30 - 5:40)

-     Lauren to provide update: mentor training plans; data collection; next steps

5.   ACFAC direction and goals Part II (5:40 - 6:25)

Followup from June brainstorming session: refer to June minutes (link above): "Where do we go next? What do we champion now? What are our priorities?"

·         Social networking: Elyse to provide Facebook update

·         CFRI conference/retreat: Kriss to report on ACFAC table; discuss printing budget from Eric W; review business card design, see file at  https://docs.google.com/file/d/0B7WrtjnOi5wMNDEzNTM5Y2ItMmQ4Yi00ZTZlLWExY2UtODI1MTA4MWEwMW Vl/edit?hl=en&authkey=CKGJ59YO; ‘Ask Me’ button, see file at https://docs.google.com/open?id=0B7WrtjnOi5wMYjctalEyY3V6bGc

·         CF center newsletter: Eric M to report on ACFAC blurb

·         ACFAC projects: review Norma’s original list for discussion and articulate goals for the year; see https://docs.google.com/open?id=0B7WrtjnOi5wMcGR0bkdoWmQzY2c

6.   Council membership (6:25 - 6:35)

-     Nominations for new Vice Chair

7.   Quick updates and check-ins (6:35 - 6:45)

-     Pediatric council

8.   Action items (6:45-6:50) 

9.   Set date/time for next meeting: Wednesday, August 15, 5:00pm-7:00pm

 -------------------------

Webex:

Topic: CF Mtg - July 
Date: Wednesday, July 18, 2012 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 803 784 942 
Meeting Password: july 

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2. If requested, enter your name and email address. 
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6-20-2012 Meeting Minutes

June 20^th, 2012 ACFAC Meeting Minutes

Members Present:  Colleen, Ann, Ed, Elyse, Eric M., Kriss, Erika, Jackie

Guests Present:  Rosie, Zoe

Members Absent:  Lauren, Laura, Jay

1. May meeting minutes approved.
2. The mandatory Stanford Hospital volunteer orientation sessions as follows: June 22^nd, 2012 from 1p-5p and June 28^th , 2012 from 530p to 930p.   The orientations will be held in the nursing administration conference room, H0105, ground floor.  Please let Laura or Kriss know if you will be attending.  There was a question if the meetings will be available via WebEx, Kriss or Laura to follow up regarding that issue, as well as any repercussions if a member cannot attend either session.
3. Update regarding the Peer2Peer program:  Lauren still working with Joan for the initial training and set-up of the program.  More information to come at next month's meeting. 
4. Discussion held regarding the ACFAC direction and goals, with focus this month on outreach to the Stanford Adult CF community.  Ideas included: focusing more on "word of mouth", instead of mailers or written communication; use of social networking, specifically, Facebook; including information in the Stanford CF newsletter; using business cards; holding an event to raise awareness; inquiring about having a table at CF-related events in the area, CFRI, for example; and drawing people in by increasing awareness about current council projects. The council decided to begin with using Facebook, Elyse will work with Cathy H. to routinely use the Stanford CF Center Facebook page to provide information about the council.  Information to be provided includes announcing the meeting date / time, and a description of the council to increase awareness.  Members encouraged to brainstorm for next month about goals and projects for the council.
5. The council also discussed methods of outreach and communication that have been successful in the past.  Some members felt the "town hall" style meeting that was held was not successful, in that few from the CF community attended, but helpful to those who did attend.  Also discussed was revisiting the quarterly feedback meetings with clinic staff, however, it was decided that the council currently does not have feedback to provide.  Also discussed was the time of the meetings and whether or not this limits people from being able to attend.  However, it was also discussed that holding the meeting earlier or later would reduce the ability of clinic staff to attend the meetings.
6. The new member application for this month was not received, voting will be postponed until next month.  Reminder provided that voting on new members is held in a closed session, usually at the beginning of the meeting. 
7. Kriss announced her resignation effective after the July 2012 meeting, Erica announced her resignation effective after the June meeting.  Discussion to be held next month regarding the vice chairperson vacancy.  Also discussed was that the bylaws state the minimum number of members must be 9, at the end of the July meeting, the council will be at this minimum. 
8. No discussion regarding clinic operations.
9. Reminders:   The CFRI conference will be held July 27^{th ,} 2012 thru July 29^th, , 2012.  For more information, please visit http://www.cfri.org/formconfreg2012.shtml.  The CFRI retreat will be held July 29^th, 2012 thru August 5^th , 2012.  For more information, please visit http://www.cfri.org/2012Retreat.shtml
10. Next meeting: Wednesday, July 18^th, 2012 5p – 7p.

June Action Items

1. All:  Please consider "Like-ing" the Stanford CF Center page on Facebook
2. All:  Brainstorm ideas for new projects, new goals and continued outreach
3. All: Please let Laura / Kriss know if you will be attending the hospital volunteer orientation.
4. Elyse to contact Laura regarding the WebEx links for the ACFAC meetings to post on the Stanford CF Center Facebook page
5. Kriss to forward a "blurb" to Elyse about the ACFAC description to include on the Stanford CF Center Facebook page
6. Laura / Kriss to continue to try and get more information on the Stanford hospital volunteer orientation dates / times, and WebEx availability
7. Kriss to investigate getting buttons for the members of the council who will be attending the CFRI conference / retreat
8. Eric M to write short "blurb" for the upcoming Stanford CF Center newsletter.  This can be presented / discussed at next meeting for final approval

5-16-2012 Meeting Minutes

ACFAC Meeting Minutes – May 16^th, 2012                     

 

Members Present: Kriss, Laura, Erika, Colleen, Ed, Jay, Lauren, Elyse, Ann, Jackie

 

Members Absent: Eric M.

 

Guests Present: Kathy, Rosie, Zoe

 

1. April minutes approved.
2. Discussion was held regarding how the Stanford Patient Advisory Council (PAC) can help our council to resolve difficult issues, and that if the ACFAC has an issue that cannot be resolved, the Stanford PAC is available as a resource.  The council decided to add an agenda item entitled "Clinic Operations" to allow comments, concerns, etc. to be addressed in the presence of clinic staff, yet retain anonymity.  Council members that would like a comment, concern, etc. brought to the council anonymously can send it to the chairperson to put under this agenda item  
3. Members of the ACFAC are considered volunteers of the hospital.  As a result, members are asked to attend the hospital orientation for volunteers.  There will be two days this is held with various times.  Laura will pass along the specifics as she receives them. 
4. Members have been contacting Lauren regarding being mentors for the Peer2Peer program.  Any further questions or interest should be directed to Lauren.  The program is slated to begin with the training sessions in June/July and more information to follow.  Current members who are interested in becoming mentors are Lauren, Laura, Jay, Elyse and Kriss.  News of the program was also included in the CF center newsletter.
5. Kriss has updated the ACFAC resource page with the new bylaws and the new flyer.  The correct flyer is now on the ACFAC tab on the Stanford CF center website. 
6. Most of the CF team members have completed the "Get to know your team" questionnaire.  One more email invitation to fill out the questionnaire will be sent to the remaining members.
7. Discussion held regarding the council's direction and goals for the upcoming year.  The plan for next month will be to discuss outreach more in-depth, once members have the opportunity to think of ideas. The plan for July will be to set council goals and direction.
8. The next meeting is set for Wednesday, June 20^th 5pm to 7pm.

 

May Action Items:

 

1. ALL - Please remember upcoming mandatory orientation for hospital volunteers (which includes all ACFAC members) in late June, and in early July
2. Laura - Add PAC discussion or clinic operation discussion agenda item early in upcoming agendas
3. Lauren - Add Elyse and Jay to her mentor list
4. ALL - Brainstorm ideas for setting council goals for our July meeting
5. ALL - Brainstorm ideas for council outreach for our June meeting
6. Jay - Coordinate with pediatric council to attend some meetings
7. ALL - If you have specific issues with clinic operations, email the chairperson

 

 

 

6-20-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, June 20, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed. Vice Chair to lead meeting.

COUNCIL BUSINESS

1.   Adopt last month's minutes (5:05-5:10)

-    Please review May minutes at http://cfacmeetings.blogspot.com/2012/06/5-16-2012-meeting-minutes.html

2.  PAC happenings (5:10-5:20)

-    Kriss to provide Laura's update:
From Joan Forte: An update on the Patient Partner Volunteer Orientation program:
First session: will be held June 22, from 1p-5p
or
Second session: will be held June 28, 5:30-9:30p
Location: Nursing Administration Conference Room H0105, ground floor (From the gift shop in the main hospital, take the escalator down one floor then follow the overhead signs for "Nursing Admin suite").
RSVP to: Joan Forte

3.   Clinic operations (5:20-5:30)

4.   Peer2Peer Program (5:30 - 5:35)

-   Lauren to provide update: mentor training plans; data collection; next steps

5.   ACFAC direction and goals Part I (5:35 - 6:15)

-    "Where do we go next? What do we champion now? What are our priorities?"

-    Brainstorming on council outreach to larger Stanford CF adult community: how can we get more CF adults to know about our role and our presence? what can we do to get their input and hear their voices? what have we tried in the past (surveys, other) and what has worked or not worked? 

-   Elyse to provide update re council blurbs on CF Center FB page

6.   Council membership (6:15 - 6:35)

-     Colleen to present new member application

-     Kriss to report on officer and member changes

7.   Quick updates and check-ins (6:35 - 6:45)

      -     CFRI conference and retreat:

Conference: July 27th through July 29th, 2012. For more information on CFRI conference: http://www.cfri.org/formconfreg2012.shtml
RetrEAT: July 29th through August 5th, 2012. For more information on CFRI retrEAT: http://www.cfri.org/2012Retreat.shtml

8.   Action items (6:45-6:50) 

-   Read action items. Include brainstorm for July meeting: goal-setting for the year.

9.   Set date/time for next meeting: Wednesday, July 18, 5:00pm-7:00pm

-------

Webex:

Topic: CF Mtg - June
Date: Wednesday, June 20, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 801 652 157
Meeting Password: june


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4. Click "Join".

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-------------------------------------------------------
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Access code:801 652 157

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5-16-2012 Agenda

5-16-2012 Agenda

 

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, May 16, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed.

COUNCIL BUSINESS

 

1.   Adopt last month's minutes (5:05-5:10)

-    Please review March minutes at http://cfacmeetings.blogspot.com/2012/05/4-18-2012-meeting-minutes.html

2.  Stanford PAC update (5:10-5:55)

Laura to report on April PAC meeting; ACFAC feedback and discussion:

-    PAC role in supporting clinic advisory councils with difficult issues: how they can help us as relates to our "roles & responsibilities" conversation of last month

-    PAC description and expectations: read doc at https://docs.google.com/open?id=0B7WrtjnOi5wMcEJ2UGdjT24tNzA

-    orientation for hospital volunteers

3.   Peer2Peer Program (5:55-6:10)

      Lauren to provide update: mentor selection; training plans; next steps

4.   Quick updates and check-ins (6:10-6:20)

-    Jay: ACFAC resource page updated with new bylaw and flyer links http://cfacmeetings.blogspot.com/p/stanford-acfac-resource-page.html

-    Laura: correct council flyer at http://cfcenter.stanford.edu/acfac/documents/CFAC-flyer-ONE-4-18-2012.pdf

-    Colleen or Dr. Mohabir: status of Get To Know Team questionnaire

6.   ACFAC direction and goals (6:20-6:35)

-    Where do we go next? What do we champion now? What are our priorities? Initiate council discussion.

7.   Council concerns and open discussion period (6:35-6:45)

8.   Action items (6:45-6:50) 

- Kriss to read.

9.   Set date/time for next meeting: Wednesday, June 20, 5:00pm-7:00pm

 

**************************

To attend this meeting via Webex:

 

Topic: CF Mtg-May
Date: Wednesday, May 16, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 807 123 228
Meeting Password: may16

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3. If a password is required, enter the meeting password: may16
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Access code:807 123 228

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4-18-2012 Meeting Minutes

ACFAC Meeting Minutes – April 18^th, 2012

 

Members Present:  Laura, Kriss, Colleen, Ann, Jay, Lauren, Elyse, Erika, Jackie

Members Absent: Ed, Eric M

 

Guests Present: Jocelyn, Kathy, Zoe, Sydney, Rosie, Siri, Joan, Dr. Mohabir

1. January meeting minutes approved, February meeting minutes approved.  Answers were given for Laura's Ed day Quiz.
2.  Presentation from Joan Forte, Director of Patient Care Services, entitled " Partnering with Patients, Patient and Family Centered Care Programs at Stanford."  Please click on link for presentation. https://docs.google.com/viewer?a=v&pid=gmail&attid=0.1&thid=136d50524bf67890&mt=application/vnd.ms-powerpoint&url=https://mail.google.com/mail/?ui%3D2%26ik%3D9ab638220c%26view%3Datt%26th%3D136d50524bf67890%26attid%3D0.1%26disp%3Dsafe%26zw&sig=AHIEtbQZzheWPLxQ3TMciObVOmEY72TOpA&pli=1  Also discussed was the planned roll-out for the CF Mentor / Peer-to-Peer program.  It will begin with a pilot program with 4 volunteer mentors initially.  The pilot will be 6 months.  Further details, such as method of contact, frequency of contact, and a training program for becoming a mentor are still being discussed.  Those council members interested in being a mentor should contact Lauren.
3. The new "We want to hear your voice" flyer has been posted on the ACFAC website.  Laura reported that per Ed, the process on the inpatient side has been fixed, the floor managers are now aware of where the flyers are to be stored.  In addition, the updated bylaws are now posted on the ACFAC website as well.
4. Discussion occurred regarding members providing input and feedback, especially when clinic staff give presentations. 
5. Laura provided several updates and reminders.

a.     Laura attended most recent CORE PAC meeting (Stanford's Advisory Council for patient advisory councils).  Notes included a discussion of the pros / cons of WebEx use, the recent accreditation of Stanford as a MAGNET hospital for nurses, and the implementation of multidisciplinary team rounds.  The council discussed that this appears to be already happening with the CF team, but Laura reports this is one of the hospital-wide goals.

b.     For the "Get to Know the Team" questionnaires, most team members have filled out the responses which are now posted on the Stanford CF Center website under the "Adult" tab (not the Advisory Council Adult tab.)

c.      Laura provided reminder that there are 2 separate tabs on the CF Center Website; the Adult tab and the Advisory Council tab with the drop-down for the Adult Council.  Please be sure to be clear when referring to each in documents and discussions.

Next meeting set for Wednesday, May 16^th from 5-7 pm.

 

April action items:

 

1. Kriss:  Ask Laura to include link to the council flyer on next agenda http://cfcenter.stanford.edu/acfac/documents/CFAC-flyer-ONE-4-18-2012.pdf) reminder that our new member / resource page is is: http://cfacmeetings.blogspot.com/p/stanford-acfac-resource-page.html
2. Jay:  To follow up on website flyer and bylaw links, and the council not showing up under the teen tab
3. Colleen: To touch base with Dr. Mohabir on the "Get to Know the Team" questionnaire progress 
4. Laura: Report to the Core Pac meeting regarding the value of WebEx due to geography
5.  ALL:  Look for agenda topics with staff and prepare individual thoughts
6. ALL:  Consider being a part of the pilot mentor / peer program.  Contact Lauren with questions or if interested in volunteering.

 

 

 

 

 

1.    

4-18-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, April 18, 2012, 5:00pm-7:00pm

Location: Blake Wilbur Conference Room

INTRODUCTORY REMARKS

Introduction of any guests or others as needed.

COUNCIL BUSINESS

1.   Council chairperson (5:05-5:15)

a.   Adopt January and February minutes. Please review minutes at http://cfacmeetings.blogspot.com/2012/02/february-15th-2012-meeting-minutes.html and http://cfacmeetings.blogspot.com/2012/02/1-18-2012-meeting-minutes.html

b.   Laura's CF Ed Day quiz: answers given and prizes awarded.

2.   CF mentor prorgram (5:15-5:55)

Lauren and Joan (Joan Forte, Director of Patient Care Services) to present roll-out of CF Mentor/Peer-to-Peer program:
- Partnership with hospital and other clinics
- Mentor training, supervision, tracking

3.   "We want to hear your voice" council flyer (5:55-6:05)

Ed to report finalized process for getting the flyer to inpatients; see flyer (one version only, now) at https://docs.google.com/open?id=0B7WrtjnOi5wMYVJUWHJLaTRRMUNQSUg0cURvQ29yUQ. Kriss to report about flyer on website.

4.   Clinic/patient communication (6:05-6:20)
      Laura to address February meeting's presentation by Kathy and clinic staff regarding followup paperwork; our council's role and responsibilities.

5.   Quick updates and check-ins (6:20-6:35)

      - Laura to report on CORE PAC meeting

      - Get to Know Team questionnaires: status update

      - Clarify CF adult tab (http://cfcenter.stanford.edu/adults/) v. ACFAC tab(http://cfcenter.stanford.edu/acfac/) 

6.   Council concerns and open discussion period (6:35-6:50)

7.   Action items: Kriss to read.

8.   Set date/time for next meeting: Wednesday, May 16, 5:00pm-7:00pm

**************************

To attend this meeting via Webex:  

Topic: CF Mtg-April
Date: Wednesday, April 18, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 805 100 819
Meeting Password: april

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2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: april
4. Click "Join".

To view in other time zones or languages, please click the link: https://stanfordmed.webex.com/stanfordmed/j.php?ED=171683902&UID=1252240577&PW=NYmYwZTM2NmU4&ORT=MiM0

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Call-in toll number (US/Canada): +1-408-600-3600
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Access code:805 100 819

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