CF Advisory Council Meeting Minutes 7/20/2011
Council Members: Colleen Dunn, Ann Robinson, Erika Harrington, Kriss Benson, Jay Archibald, Dave Cartnal, Ed Kinney, Jackie Rotier, Lizeth Haber, Elyse Elconin-Goldberg.
Guests: Arthur Yang, Anna Modlin, Nerissa Del Rosario, Charlene Kell.
Absent: Caleigh Haber, Laura Caltron, Laura Steuer
In the Adult CF Advisory Council's (ACFAC) first years, they've successfully encouraged the new Adult CF Center to start an Adult CF Support Group and created forms to give patients tools to communicate their medical routine and wishes to the CF team. The ACFAC asks that adult CF patients and their families contact the council and make use of this unique resource and avenue for direct communication.This paragraph was discussed at length. The council agreed that we would like to see our logo with this paragraph. The council also wanted to make a few changes to the paragraph to make is a bit more open to guests. The council voted and decided that whatever Kriss came up with would be fine.
5. Our August 2011 ACFAC Current Member list (13 members total):
Note: A quorum is defined as 50% + 1 voting members. We have 12 voting members. So, at each meeting, we need at least 7 voting members present.
Laura (Vice Chairperson)
Colleen (Membership Chairperson)
Lizeth (non-voting member)
Due to Laura's absence Erika was asked to give an update on Laura's research addressing physician variability vs. individual doctoring. To sum it all up she is making lots of progress and is looking forward to some of the results.
13. Next meeting is scheduled for *September 21, 2011; 5-7pm.*