Thursday, November 10, 2011

11-16-2011 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross-infection control! 


Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Meeting Date/Time: Wednesday, November 16th, 2011 from 5:00 – 7:00 P.M.
Location: Blake Wilbur Conference Room


INTRODUCTORY REMARKS
  • Introduction of Council Members (if guests are present) 
  • Introduction of Guests (if guests are present)
  • Approval of Minutes from Previous Meeting: 
COUNCIL BUSINESS
  1. Council Chairperson - Fill position permanently now? Interim Chairperson? Skip December? - Kriss
  2. Conversation about filling council officer positions, office responsibilities, and filling vacant spots before our January election. Officers please think about if you want to ask to remain in your position. Members please give real thought to if you want to consider an officer position and any questions you might have about each position. - Laura
  3. ACFAC Website: http://cfcenter.stanford.edu/acfac/
    Update 2: "Get to Know the Stanford Adult CF Team" questionnaire CF Team response (deadline requested was October 10th).  
  4. Discussion: Ask to add a new Adult tab on the CF center website?
    Review: http://cfcenter.stanford.edu
    Suggestions for what would be in this new Adult tab:
    a. note from last meeting: “How adult CF clinic works”
    b. note from last meeting: “Your Adult Doctor Choices”
    c. note from last meeting: “How To Call In Sick”
    d. note from last meeting: adult mentor program page or blurb
    e. discussion of each council member's brainstorming on this topic
  5. Mentor Program discussion and suggestions - Lauren
    - form for potential mentors (review file: coming soon)
  6. Council concerns and open discussion period
    Please note: Adult CF Support Group is on 12/2 with a new start time at 11:30am (new 1.5 hour meetings)
  7. To close our meeting, Vice Chairperson (Laura) reviews her record of all items needing action and person(s) responsible for each action 
  8. Set date/time for next meeting – **Discuss December 21st, Wednesday at 5pm

___________________________________
To attend this meeting via WebEx: 
Topic: CF Mtg - November 
Date: Wednesday, November 16, 2011 
Time: 5:15 pm, Pacific Standard Time (San Francisco, GMT-08:00) 
Meeting Number: 806 703 515 
Meeting Password: november 

------------------------------------------------------- 
To join the online meeting (Now from mobile devices!) 
------------------------------------------------------- 
1. Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=164676232&UID=1226523577&PW=NMDQ4NzkwNjUz&RT=MiM0 
2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: november 
4. Click "Join". 

To view in other time zones or languages, please click the link: 
https://stanfordmed.webex.com/stanfordmed/j.php?ED=164676232&UID=1226523577&PW=NMDQ4NzkwNjUz&ORT=MiM0 

------------------------------------------------------- 
To join the audio conference only 
------------------------------------------------------- 
To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): +1-408-600-3600 
Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?serviceType=MC&ED=164676232&tollFree=1 
Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf 

Access code:806 703 515 

------------------------------------------------------- 
For assistance 
------------------------------------------------------- 
1. Go to https://stanfordmed.webex.com/stanfordmed/mc 
2. On the left navigation bar, click "Support". 

IMPORTANT NOTICE: This WebEx service includes a feature that allows audio and any documents and other materials exchanged or viewed during the session to be recorded. By joining this session, you automatically consent to such recordings. If you do not consent to the recording, discuss your concerns with the meeting host prior to the start of the recording or do not join the session. Please note that any such recordings may be subject to discovery in the event of litigation.

    Wednesday, November 2, 2011

    October 2011 Minutes


    10-19-2011 Minutes

    • Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. If you would like to attend via teleconferencing, please contact Erika Harrington mrs.harrington@sbcglobal.net (the current Advisory Council secretary). She will let you know how you can participate.  (Web conferencing/Skype not yet available.)

    CF Advisory Council Meeting Minutes 9/21/2011


    Present:


    Council Members: Colleen Dunn, Laura Steuer, Ann Robinson, Kriss Benson, Erika Harrington, Lauren Caltron, Jay Archibald, Eric Marten, Ed Kinney.


    Guests: Zoe Davies, Dr. Paul Mohabir, Siri Vaeth (member of the CF Parent Advisory Council)


    Absent: Lizeth Haber, Dave Cartnal, Jackie Rotier, Elyse Elconin-Goldberg


    Introductory Remarks:


    • All council members introduced themselves for the benefit of those using remote attendance methods.

    • Guests introduced themselves.

    • Minutes from the previous meeting were approved.Date/time for next meeting – November 16th, Wednesday at 5pm


    Council Business:


    1. From the Pediatric council meeting in September: Is there enough priority on adult content on CF center site? http://cfcenter.stanford.edu/ . The council talked about this and decided to brainstorm some ideas and bring them to our next meeting.

    2. WebEx meeting video and voice recording links removed from online meeting blog. Our council secretary will always have a file with links to our recordings. Erika will pass on this info to the next ACFAC secretary.

    3. Reminder that a conversation about filling council officer positions, office responsibilities, and filling vacant spots before our January election is planned for our November council meeting. Officers please think about if you want to ask to remain in your position. Members please give real thought to if you want to consider an officer position and any questions you might have about each position.

    4. ACFAC Website:http://cfcenter.stanford.edu/acfac/
      -Update:"Get to Know the Stanford Adult CF Team" questionnaire CF Team response (deadline requested was October 10th).
      - Parking note and Council template is on our resource page now. Our resource page link:http://cfacmeetings.blogspot.com/p/stanford-acfac-resource-page.html
      -Please submit any website changes or additions to Jay. Changes will be made in 1 month batches after each month's meeting.

    5. Discussion: Each council member brainstormed 2 questions to add to Adult CF in-clinic survey for any new versions that may be created in the future (if the first version form is a success). I will attach a link to view all of the questions that the council came up with. Later on we will narrow down the list.

    6. Discussion: Each member to brainstorm ideas to encourage adults to show up to adult CF clinic at least quarterly. Also, brainstorm how to inform or raise awareness of the choice adult CF patients have to be followed by one doctor (reminder, these requests are made through Kathy). I will attach a link to some of the ideas the council came up with.

    7. Eric M. briefly summarized "CFRI LIVE - Successful Transition: Ride With Us" (presented by Kathy Gesley). The CFRI presentation is here: http://www.ustream.tv/recorded/17823167

    8. Date/time for next meeting – November 16th, Wednesday at 5pm