Stanford Adult Cystic Fibrosis Patient & Family Advisory
Council
Date/Time: Tuesday, May 28,
2019 from 5:30pm-6:50pm
Location: WebEx
Members should get set up 10 minutes before the
scheduled meeting time using the link provided in the green button on the WebEx
email or the link at the bottom of the form.
It is recommended you call in for audio as opposed to using your
computer.
Advisory Council visitors are welcome. Please have this copy of the
agenda and attachments with you during the meeting.
Agenda
1. Adopt April
minutes (5:30)
Please review Shawn’s
minutes on the blog or via his email previously sent to you
2. Project Update
(5:30 – 6:15)
a. Memorial Space
at Stanford – Ed and Colleen
A subcommittee meeting on April 29 will review some options of art that they would like to propose to you to consider. After that meeting, they will prepare information on the works and artists for you to select from – target to be ready for CF Advisory Council meeting on May 28. Current hospital grand opening is Oct. 19, 2019
A subcommittee meeting on April 29 will review some options of art that they would like to propose to you to consider. After that meeting, they will prepare information on the works and artists for you to select from – target to be ready for CF Advisory Council meeting on May 28. Current hospital grand opening is Oct. 19, 2019
b. CF Encounters –
Jacob
Has some ideas and will begin to develop them once school has ended
Has some ideas and will begin to develop them once school has ended
c. Virtual Clinic
Proposal/Online Collaboration – Amy
Russell Wise waiting for follow-up from last CQI meeting that they had on April 9th.
Russell Wise waiting for follow-up from last CQI meeting that they had on April 9th.
d. Transplant
Education – Elyse
Will publish in a week after council review, first to Stanford CF Page and possibly hardcopy at the clinic
Will publish in a week after council review, first to Stanford CF Page and possibly hardcopy at the clinic
e. Bodywork & Value for CF Patients – Olivia/Jacob
Project scope will be defined, reviewed at next meeting
Project scope will be defined, reviewed at next meeting
f. Additional
Stanford Volunteer Activities – Shawn/Olivia/Elyse
Walk with Me over for Shawn, plans to continue for next year
Walk with Me over for Shawn, plans to continue for next year
g. Clinic-Patient Opportunities –
Shawn/Kate
As needed
As needed
h. MyHealth update – Shawn
No further information
No further information
i. New Member
Drive
Reminder – reach out to CF patients if you are leading a project
Reminder – reach out to CF patients if you are leading a project
3. Reminders
a. Publicize council
and council activities
b. Continue to complete volunteer requirements
c. Future Projects
i Family Planning
– TBD
ii Inpatient Preparedness
