Please have your own copy of the agenda and attachments with you during the meeting.
Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.
Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. Only one individual with CF may be present in the actual meeting room; please contact the chairperson Laura Steuer for further information.
Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF; please attend via Webex.
The Stanford Adult
Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday,
March 20, 2013, 5:00pm-7:00pm
Location: Blake Wilbur
Conference Room
1.
Introductions (5:00 –
5:05)
2.
Adopt February
minutes (5:05 – 5:10)
3.
Stanford CF Education Day
(5:10 – 5:20)
·
Feedback, thoughts, sharing
4.
CFF Infection Protocol
press release (5:20 – 5:35)
· Medical and social ramifications
5.
Patient-Family
Centered Care: ACFAC / CF Center partnership project (5:35 – 6:20)
·
Presentation by staff:
What are the current clinic goals/projects? (5:35 – 5:50)
·
Discussion by council:
Which goal/project shall we undertake? Assignment of tasks? (5:50 – 6:20)
6.
Quick updates and check-ins
(6:20 – 6:35)
·
Fundraising update: Some
great news! (Ann, Elyse)
·
Clinic operations
·
CF newsletter (Laura)
7.
Action items (6:35 –
6:40)
8.
Date/time for next
meeting: Wednesday, April 17, 5:00pm-7:00pm
#########
#########
To attend this meeting
via WebEx:
Topic: CF Advisory Council - March
Date: Wednesday, March 20, 2013
Time: 4:45 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 800 309 719
Meeting Password: march
-------------------------------------------------------
To start or join the online meeting
-------------------------------------------------------
Go to https://stanfordmed.webex.com/stanfordmed/j.php?ED=199305907&UID=493120277&PW=NNjNiZ GVjYzkz&RT=MiM0
-------------------------------------------------------
Audio conference information
-------------------------------------------------------
To receive a call back, provide your phone number when you join the meeting, or call the
number below and enter the access code.
Call-in toll-free number (US/Canada): 1-877-668-4493
Call-in toll number (US/Canada): 1-650-479-3208
Global call-in numbers: https://stanfordmed.webex.com/stanfordmed/globalcallin.php?service Type=MC&ED=199305907&tollFree=1
Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf
Access code:800 309 719
-------------------------------------------------------
For assistance
-------------------------------------------------------
1. Go to https://stanfordmed.webex.com/stanfordmed/mc
2. On the left navigation bar, click "Support".
To add this meeting to your calendar program (for example Microsoft Outlook), click this
link:
https://stanfordmed.webex.com/stanfordmed/j.php?ED=199305907&UID=493120277&ICS=MS&LD=1&RD=
2&ST=1&SHA2=AAAAAuYm2gIYvCgMsaA91wx-yC16EGzIRGeVmkT2e-OSo-0t
To check whether you have the appropriate players installed for UCF (Universal
Communications Format) rich media files, go to https://stanfordmed.webex.com/stanfordmed/s ystemdiagnosis.php.
http://www.webex.com
