Saturday, March 16, 2013

3-20-2013 Agenda

Please have your own copy of the agenda and attachments with you during the meeting.

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. Only one individual with CF may be present in the actual meeting room; please contact the chairperson Laura Steuer for further information.

Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF; please attend via Webex.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, March 20, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room

1.      Introductions (5:00 – 5:05)

2.      Adopt February minutes (5:05 – 5:10)

3.      Stanford CF Education Day (5:10 – 5:20)

·         Feedback, thoughts, sharing

4.      CFF Infection Protocol press release (5:20 – 5:35)

·        Medical and social ramifications

5.      Patient-Family Centered Care: ACFAC / CF Center partnership project (5:35 – 6:20)

·         Presentation by staff: What are the current clinic goals/projects? (5:35 – 5:50)
·         Discussion by council: Which goal/project shall we undertake? Assignment of tasks?  (5:50 – 6:20)

6.      Quick updates and check-ins (6:20 – 6:35)

·         Fundraising update: Some great news!  (Ann, Elyse)
·         Clinic operations
·         CF newsletter (Laura)

7.      Action items (6:35 – 6:40) 

8.      Date/time for next meeting: Wednesday, April 17, 5:00pm-7:00pm


To attend this meeting via WebEx:

Topic: CF Advisory Council - March 
Date: Wednesday, March 20, 2013 
Time: 4:45 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 800 309 719 
Meeting Password: march 
To start or join the online meeting 
Go to

Audio conference information 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers:

Toll-free dialing restrictions: 
Access code:800 309 719 
For assistance 
1. Go to 
2. On the left navigation bar, click "Support". 
To add this meeting to your calendar program (for example Microsoft Outlook), click this 

To check whether you have the appropriate players installed for UCF (Universal 
Communications Format) rich media files, go to


No comments:

Post a Comment