Monday, January 16, 2012

1-18-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, January 18, 2012, 5:00pm-7:00pm
Location: Blake Wilbur Conference Room

Introduction of any guests or others as needed.

  1. Council chairperson: Interim Chair Laura - Welcome and theme for this month: Our council needs active membership and leadership in order to continue to exist. Updated membership roster to be sent.
  2. January elections: All officer positions are up for election; for each position, we will either re-elect the existing officer or elect a new person. Membership Chairperson, Secretary, Vice Chairperson, Chairperson.  ACFAC website bios to be updated after elections.
  3. Clinic/patient communication: Eric W. to present his communication with Kathy regarding providing patients with hard copy information regarding required follow up tests, medications, etc. at the end of each visit.
  4. Pediatric transition brochure: Pediatric Council seeks our input on ideas to support CF patients in transition from peds to adult clinic, such as what we would liked to have known before we transitioned; location of clinic; members of the team; wisdom to ease the new patient's transition. Colleen to lead discussion and brainstorming on this topic for a brochure being created by Peds Council.
  5. Adult CF website tabs: Kriss to present checklists for adult CF tabs, including Sick Call How-To and Hospital Admissions Packing List. See documents at
    and   Check in with Colleen re written sections of website tabs.
  6. "Get to Know the Team" questionnaire: Colleen to present update on responses
  7. CF Mentor Survey: Lauren to present update. See document at
  8. Council concerns and open discussion period
  9. Set date/time for next meeting: Wednesday, February 15, 2012, 5:00pm-7:00pm
  10. -------------------------------------------------------
    To attend this meeting via WebEx:  Topic: CF Mtg - January  Date: Wednesday, January 18, 2012  Time: , Pacific Standard Time (San Francisco, GMT-08:00)  Meeting Number: 803 923 933  Meeting Password: january  -------------------------------------------------------  To join the online meeting (Now from mobile devices!)  -------------------------------------------------------  1. Go to A5Zjg0NTA5&RT=MiM0  2. If requested, enter your name and email address.  3. If a password is required, enter the meeting password: january  4. Click "Join".  To view in other time zones or languages, please click the link: A5Zjg0NTA5&ORT=MiM0  -------------------------------------------------------  To join the audio conference only  -------------------------------------------------------  To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code.  Call-in toll-free number (US/Canada): 1-877-668-4493  Call-in toll number (US/Canada): +1-408-600-3600  Global call-in numbers: &tollFree=1  Toll-free dialing restrictions:  Access code:803 923 933  -------------------------------------------------------  For assistance  -------------------------------------------------------  1. Go to  2. On the left navigation bar, click "Support