Friday, September 14, 2012

9-17-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, September 195:00pm-7:00pm
Location: Blake Wilbur Conference Room

Introduction of any guests or others as needed.


1.   Adopt July’s minutes (5:05-5:10)
-    Review July minutes including Action Items at

2.   ACFAC direction and goals Part III (5:10 – 5:55)

-         Laura to open a discussion: now that the council has attended the volunteer orientation and learned about the hospital’s initiative toward Patient/Family Centered Care (PFCC), can we find in this a new paradigm for our council work?
-         For some time, the council has told the clinic what is important to us; we can also hear from the clinic what is important to them.
-         How can ACFAC support the clinic’s goals/visions around PFCC?
-         We hope to hear from clinic admin and clinic healthcare providers on this topic.
-         In addition, what can ACFAC work on over the upcoming year, as a consistent mutual effort by all members (e.g. sponsor an event, hold an educational seminar)?

3.   Clinic operations (5:55 – 6:05)

4.   Peer2Peer Program (6:05 – 6:25)
-    Lauren to provide update on mentor orientation: please read document at
-         request council feedback on mentor training issues
-         announce space for additional mentor

5.   Council membership (6:25 - 6:30)
-     Nominations for new Vice Chair

6.   Quick updates and check-ins (6:30 - 6:40)
-         Jay: pediatric council; updated ACFAC bios
-         Elyse: ACFAC presence on Facebook
-         Laura: CF College 101 event
-         Ed: removal of outdated council brochures

7.   Action items (6:40-6:45

8.   Set date/time for next meeting: Wednesday, October 17, 5:00pm-7:00pm



Topic: CF Mtg - Sept
Date: Wednesday, September 19, 2012
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00)
Meeting Number: 808 431 558
Meeting Password: september

To join the online meeting (Now from mobile devices!)
1. Go to BhNmVkNzU2&RT=MiM0
2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: september
4. Click "Join".

To view in other time zones or languages, please click the link: BhNmVkNzU2&ORT=MiM0

To join the audio conference only
To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code.
Call-in toll-free number (US/Canada): 1-877-668-4493
Call-in toll number (US/Canada): +1-408-600-3600
Global call-in numbers: &tollFree=1
Toll-free dialing restrictions:

Access code:808 431 558

For assistance
1. Go to
2. On the left navigation bar, click "Support".


To update this meeting to your calendar program (for example Microsoft Outlook), click this link: S2&LD=1&RD=2&ST=1&SHA2=s1nqYHE36Ebl9cR4VzRVM-llLcHs4EVYAkZemoqq4bI=&RT =MiM0

WebEx will automatically setup Meeting Manager for Windows the first time you join a meeting. To save time, you can setup prior to the meeting by clicking this link:

The playback of UCF (Universal Communications Format) rich media files requires appropriate players. To view this type of rich media files in the meeting, please check whether you have the players installed on your computer by going to