Sunday, February 12, 2012

2-15-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control! 

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time. 

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda
Date/Time: Wednesday, February 15, 2012, 5:00pm-7:00pm
Location: Blake Wilbur Conference Room

Introduction of any guests or others as needed.

1.   Council chairperson: Welcome and theme for this month:  What do we champion next?
     - Update on all-Stanford Advisory Council meeting
     - Stanford CF Education Day, March 3

2.   Bylaws revisions: We will vote on the revisions proposed at our January meeting.  Revisions include job description for Website Revision Manager; updated job description for Secretary and for Membership Chair.  Please read revisions and bylaws at

3.   Clinic/patient communication: Eric W. to present his communication with Kathy regarding providing patients with hard copy information regarding required follow up tests, medications, etc. at the end of each visit. 

4.   CF mentor questionnaire: Lauren to present update on who has reviewed the questionnaire; next steps to launch mentor program; council's role if any.  Please see questionnaire at

5.   "We want to hear your voice" inpatient form: Ed to report from inpatient inquiry and Eric W. to report from admin inquiry: process for getting form to and from the B3/C3 inpatients; nurse manager to whom inpatients give the form.  Please see form at

6.   Adult CF website tabs: Colleen/Kriss to report on Sick Call and Admission checklists: input received from clinic staff.  Please see checklists at and

7.   "Get to know the team" questionnaire: Colleen/Kriss have gathered responses; please see at

8.   Council concerns and open discussion period

9.   Set date/time for next meeting: Wednesday, March 21, 2012, 5:00pm-7:00pm



Topic: CF Mtg - February 
Wednesday, February 15, 2012 
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# # #

Thursday, February 2, 2012

1-18-2012 Meeting Minutes

CF Adult Advisory Council Meeting Minutes 1/18/2012




Council Members:  Colleen, Jay , Ed, Lauren , Laura , Erika , Ann , Kriss , Jackie  


Guests: Zoe


Absent: Elyse, Eric


Council Business


1.     Members encouraged to participate actively in council such as reading agenda and coming prepared to meetings.  Council membership roster to be updated.

2.     - Elections held for the following officer roles: Secretary, Membership Chairperson, Vice Chairperson and Chairperson.  The responsibilities of each role were described and the council voted in new officers as follows: Jackie  elected to Secretary role, Colleen re-elected to Membership Chairperson, Kriss elected to Vice Chairperson, and Laura elected to Chairperson.   

- Council discussion regarding process once the 2-year term is up for general membership.  It was decided by the council to add responsibilities to secretary and membership chairperson roles with wording to be approved at next meeting in which by-laws are approved.

- It was voted on by the council to add a new officer role, Website Revision Manager.  Jay elected to this position and responsibilities will be added to bylaws and voted on for approval at next council meeting.

3.     Eric W. still in process of working with clinic to improve communication and provide hard copies of requested follow-up.  Details to be shared at next council meeting.

4.     The council was asked to provide feedback to the pediatric advisory council regarding the transitional process from the pediatric clinic to the adult clinic.  A brainstorming session was held, the information will be organized by Colleen and provided at next meeting, then submitted to the pediatric advisory council.

5.     The council discussed the 2 checklists to be put on the tabs on the Adult CF Website.  Discussion was held to modify content.  The "Sick Call How-To" will be sent to the clinic nurse for further review and the "Hospital Admission Packing List" to be further clarified. 

6.     Colleen / Laura received response from 3 clinic team members on the "Get To Know the Team" questionnaire.   After council discussion, the responses will be added to the next agenda,  more team members will been encouraged to fill out questionnaire for submission to the Adult CF Website.

7.     Lauren to email the completed CF Mentor Survey to Dr. Mohabir to approve and forward to Meg. 


Open Discussion / New Business

1.     We want to hear your voice flyers no longer available on the unit and difficult to find in clinic.  Ed and Laura to contact Eric W. to determine contact person on inpatient unit and ensure no modification needs to be made to the form given new management .

2.     Stanford holds an advisory council meeting for advisory councils.  Laura to provide information at next meeting regarding date / time of meeting so that interested members can attend. 

3.     Discussion held regarding updating of the council website.  Wording will be added to Website Revision Manager role to include this as a responsibility to ensure that the website is up to date.


Next council meeting set for Wednesday, February 15th, 5-7 pm.