Wednesday, April 10, 2013

4-17-2013 Agenda

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. Only one individual with CF may be present in the actual meeting room; please contact the chairperson Laura Steuer for further information.

Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF; please attend via Webex.

Please have your own copy of the agenda and attachments with you during the meeting.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, April 17, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Adopt March minutes (5:05 – 5:10)

3.      Patient-Family Centered Care: ACFAC / CF Center partnership projects (5:10 – 6:20)

a.       Follow-up from March project (5:10 – 5:20)
·         Contact Isolation guidelines for C3 and B3 hospital units, see

b.       New project: “Newly-diagnosed CFRD” (5:20 – 6:10)
·         Barriers to CFRD management; knowledge base; checking sugars; food issues
·         Short-term support; buddy system; online/chat support; printed material; pool of similar patients; other

c.       Tasks and assignments  (6:10 – 6:20)

4.      Quick updates and check-ins (6:20 – 6:30)

·         Fundraising totals (Ann, Elyse)
·         Peer2Peer program (Lauren)
·         Stanford website review & CF use cases (Brian E.)

5.      Action items (6:30 – 6:40) 

6.      Date/time for next meeting: Wednesday, May 15, 5:00pm-7:00pm


To attend this meeting via WebEx:

Topic: CF Advisory Meeting-April 
Date: Wednesday, April 17, 2013 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 285 942 151 
Meeting Password: Wel2010come 

To join the online meeting (Now from mobile devices!) 
1. Go to

2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: Wel2010come 
4. Click "Join". 
To view in other time zones or languages, please click the link:

To join the audio conference only 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers:

Toll-free dialing restrictions: 
Access code:285 942 151 
For assistance 
1. Go to 
2. On the left navigation bar, click "Support". 

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