Monday, November 12, 2012

11-21-2012 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross infection control.

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF.

Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, November 215:00pm-6:00pm  (note adjusted time)
Location: Blake Wilbur Conference Room

Introduction of any guests or others as needed.


1.   Adopt October minutes (5:05 - 5:10)
·        Review minutes at

2.   ACFAC project: “Supporting patients to get to clinic”  (5:10 - 5:45)

a.   Partnership with CF clinic on their goals, fundamental to enhancing Patient/Family Centered Care
  1. Council members present research and findings to date:
·        Laura: transportation for Sacramento/Redding areas
·        Richard: transportation for Monterey area
·        Brian: transportation for Salinas area
·        Jackie: work-related/resource information
·        Ann/Elyse: fundraising plan, tasks, and timeline
  1. Next steps: collecting information; setting deadlines
3.   Quick updates and check-ins (5:45 - 5:50)
·        Peer2Peer: mentor training launch

4.   Action items (5:50-5:55

5.   Date/time for next meeting: Wednesday, December 19, 5:00pm-7:00pm


Topic: CF Mtg - Nov
Date: Wednesday, November 21, 2012
Time: 5:00 pm, Pacific Standard Time (San Francisco, GMT-08:00)
Meeting Number: 801 641 260
Meeting Password: november

To join the online meeting (Now from mobile devices!)
1. Go to FhNzczYjM3&RT=MiM0
2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: november
4. Click "Join".

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Access code:801 641 260

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