Sunday, February 17, 2013

2-20-2013 Agenda

Please have your own copy of the agenda and review the "attachments" to assist in cross infection control.

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting timePlease see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others.

Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF; please attend via Webex.

The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Date/Time: Wednesday, February 20, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room

COUNCIL BUSINESS: Please read all attached documents; they represent a lot of work from a lot of council members.

1.       Introductions (5:00 – 5:10)

2.       Adopt January minutes (5:10 – 5:15)

3.       Quality Improvement info (5:15 – 5:25)
·         Inpatient/outpatient infection protocols (Kathy)

4.       Stanford CF Education Day (5:25 – 5:40)
·         Presentations, content, goals (Colleen)
·         ACFAC presence

5.       Patient-Family Centered Care: ACFAC / CF Center partnership project (5:40 – 6:20)
Supporting CF Center goal “helping patients gets to clinic”

·         Fundraising’s fantastic results to date (Ann, Elyse): refer to materials at
·         Who was Peter Judge? (Ann)
·         Transportation’s final flyers  (Jay, Richard, Brian E, Laura): see materials at
·         Recognizing stealth ACFAC members (curious? good! you’ll find out Wednesday – Laura)
·         Looking ahead to March: new council/center partnership project

6.       Quick updates and check-ins (6:20 – 6:30)
·         Peer2Peer program (Lauren)
·         Clinic operations

7.       Action items (6:30 – 6:40) 

8.       Date/time for next meeting: Wednesday, March 20, 5:00pm-7:00pm


To attend this meeting via WebEx:

Topic: CF Patient Advisory Board 
Date: Wednesday, February 20, 2013 
Time: 4:45 pm, Pacific Standard Time (San Francisco, GMT-08:00) 
Meeting Number: 808 786 852 
Meeting Password: February 

To start or join the online meeting 
Go to yODVhYzVi&RT=MiM0 

Audio conference information 
To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers: &tollFree=1 
Toll-free dialing restrictions: 

Access code:808 786 852 

For assistance 
1. Go to 
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To add this meeting to your calendar program (for example Microsoft Outlook), click this link: amp;LD=1&RD=2&ST=1&SHA2=AAAAAvIqT8x/MsvboViMebAM5bTkzLLStW2norTlt70FSP3P 

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