Wednesday, May 8, 2013

5-15-2013 Agenda

Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. Only one individual with CF may be present in the actual meeting room; please contact the chairperson Laura Steuer for further information.

Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF; please attend via Webex.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) 

Date/Time: Wednesday, May 15, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Membership (5:05 – 5:15) 

(Colleen, Jackie)

3.      Adopt April minutes (5:15 – 5:20)

4.      Patient-Family Centered Care: ACFAC / CF Center partnership projects
Current project: “Supporting newly-diagnosed CFRD adults”

a.       Research and findings on possible approaches (5:20 – 5:50)
o   Clinic handouts; new resources (Ed)
o   Support group (Elyse)
o   Mentoring/buddy system (Laura)
o   Social media (Brian E., Meg)

b.      Council discussion: select approach, assign tasks (5:50 – 6:20)

5.      Quick updates (6:20 – 6:30)

·         Fundraising total (Ann)
·         Peer2Peer program (Lauren)

6.      Action Items (6:30 – 6:40)

7.      Next meeting: Wednesday, June 19, 5:00pm-7:00pm


To attend this meeting via WebEx:

Topic: CF Meeting May 2013 
Date: Wednesday, May 15, 2013 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 809 978 217 
Meeting Password: Wel2010come 

To join the online meeting (Now from mobile devices!) 
1. Go to
2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: Wel2010come 
4. Click "Join". 

To view in other time zones or languages, please click the link:

To join the audio conference only 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers:
Toll-free dialing restrictions: 

Access code:809 978 217 

For assistance 
1. Go to 
2. On the left navigation bar, click "Support". 

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