March 2014 Agenda

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, March 19, 5:00pm-6:30pm
Location: Blake Wilbur Conference Room & WebEx

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.

Agenda

1.  Introduction (5:00 – 5:10)

2.  New Member Introduction (5:10 – 5:14)

3.  Adopt November minutes (5:14 – 5:15)

a.    Please review Angel’s minutes on the blog or via her link previously sent to you

4.    Clinical Research Update – Colleen (5:15 – 5:30)

5.    Stanford Patient and Community Engagement (5:30 – 6:00)
Joan Scott, Administrative Director

a.    Overview

b.    MyHealth Coordination Project

6.    Action Items from Previous Meeting (6:00 – 6:15)

a.    Brian E: check on limit to how many people can join our meeting via WebEx

b.    Colleen: Contact Jocelyn and the new nurse practitioner to find out if there can be a commitment to attend quarterly meetings

c.     Angel: Contact Laura to see if the CFRD cards where printed and if they are now available to patients in clinic

d.    Brian E: Contact Joan regarding updates the council needs for their volunteer status

e.    Angel: Contact the Living Breath Foundation to see about a possible donation to the clinic to help patients with travel, gas, and hotel expenses.

f.      Jay: Check the material on the website to make sure the travel routes are up to date.

g.    All council members to check the councils Facebook page to see if recurring issues or concerns are being brought up that the council can take a closer look at.

7.    ACFAC Project Update – (6:15 – 6:20)

8.    Proposals for New Projects (6:20 – 6:30)

9.    Action Item Review (6:30 – 6:35)

Adjournment - Next meeting 4/16/14

WebEx One Touch System (Video):

Administrator Administrator invites you to this meeting. March 19th CF WebEx One Touch 3/19/2014 11:36 AM Wed, Mar 19, 4:45 PM | 2 hr 15 min (UTC-08:00) Pacific Time (US & Canada) This is a connection for CF WebEx Telepresence. If WebEx attendees could join 15minutes early at 4:45 PM PST it would be very helpful. WebEx attendees will need to click the green "Join Using WebEx' tab within this invite and join the audio bridge by phone. Telepresence attendees will need to press the green "Join" button on the tabletop touch screen. Also, enable the camera by clicking the camera icon next to your name in the WebEx participants list. Questions call Tom Metz 650 492 3675 Join Using WebEx Meeting password: 1234 Meeting number: 344430078 Join Using Telepresence Video address: 7527500@stanfordmed.org Locations: TP-900 Blake Wilbur-Conf RM W1084 Audio Connection Call-in numbers Toll: +1-415-655-0000 Toll-free: 1-877-668-4488 Access code: 344430078 Global call-in numbers Toll-free calling restrictions

If you need the host key or cannot join the meeting using WebEx from this email message, go here: https://stanfordmedot2eft.webex.com/stanfordmedot2eft/j.php?MTID=m636f5e558c8a7a7e53fcb4b2c9a568f2 Need more details about joining the meeting using telepresence? https://10.243.78.17/tms/default.aspx?pageId=79&ConfId=9904&View=true Having trouble joining from a telepresence room? Get help.