Stanford Adult Cystic Fibrosis Patient Advisory Council (CF PAC) Agenda
Date/Time: Wednesday, July 16, 5:00pm-6:00pm
Location: Hoover Pavilion 5th Floor Conference Room& WebEx
Please Note Change in Conference Room
Directions to Hoover Pavilion
From Bayshore US Highway 101 North or South
1. Take the Embarcadero Road/West exit.
2. Follow Embarcadero Road for about two miles.
3. Turn right on El Camino Real and left on Quarry Road.
4. The Hoover Pavilion is located at 211 Quarry Road and will be on your left.
From Highway 280 North or South
1. Take the Sand Hill Road exit and head east.
2. Turn right on Arboretum Road and left on Quarry Road.
3. The Hoover Pavilion is located at 211 Quarry Road and will be on your right.
El Camino Real North or South
1. Turn on Quarry Road.
2. The Hoover Pavilion is located at 211 Quarry Road and will be on your left
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
Introduction (5:00 – 5:10)
Adopt June minutes
review Angel’s minutes on the blog or via her email previously sent to you
CF PAC Project Update – (5:15 – 5:40)
– Action Item Update
Opportunities – Monica/Elika
to other advisory boards
interviews – Jay, Monica, Victoria, Richard, Brian
– Follow-up interviews, questionnaires
w/ Cincinnati Effort/CFF
Action Items from Previous Meeting (5:40 – 5:55)
contact the editor of the newsletter regarding a questions and answer section.
The council comes up with a general question and staff can answer and have it
published in the newsletter.
Write a post on the Facebook pages asking for "parking cheats" that
anyone knows about. Collect the data, and contact Guest Services, and the CF
Clinic to see if these "parking cheats" are legit.
Members: Open suggestions "in what
ways can CFRI improve and increase resources / outreach programs in the community."
Currently CFRI provides The Discovery Series, Community Newsletter, Educational
DVD's and the Annual Educations Conference. Think of other ways to reach out?
capture MyHealth interview
E: meeting with Joan
iii. Ann /
Angel: Contact and investigate other advisory boards to investigate
opportunities for collaboration
Proposals for New Projects (5:55 – 6:10)
form (MyHealth) – Volunteers?
Adjournment - Next meeting 8/20/14