Wednesday, October 8, 2014

October 2014 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, October 15, 5:00pm-6:15pm
Location: Blake Wilbur  Room W1084 & Join Webex

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room.  This week that person will be Angel.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


  1. Introduction (5:00 – 5:10)
  2. Adopt September minutes (5:10)
    1. Please review Angel’s minutes on the blog or via her email previously sent to you
  3. Council Time Commitment Concerns – Discussion (5:30 – 5:40)
    1. Proposal on bi-monthly member meetings
  4. Improving our Visibility and Increasing Membership Status (5:40 – 5:50)
    1. Posting the agenda to the CF Patient Facebook Page - Complete
    2. Getting Meg and Jen on board to spread the word
    3. Posting on our own personal Facebook Pages to see if we can spark the interest – all
    4. Contact Cathy Hernandez so she can post the agenda each month on the Stanford webpage as well as the Stanford CF Center Facebook page – Colleen
    5. E-mail blast that goes out change name of meeting from CF Meeting to CF Adult Advisory Council – Colleen
    6. Put information and application forms about the council in the waiting room at clinic – Colleen
    7. Council members that know anyone with CF that wants to join direct them to Colleen – all
    8. Look at the Council website and think of ways to revamp it – Jay, all
  5. CF PAC Project Update – (5:50 – 6:00)
    1. Clinic-Patient Opportunities – Monica/Angel/Elika
                                                    i.     List Definition – Status
                                                   ii.     Ongoing Tracking (Oral Antibiotics, Baseline determination)
    1. Virtual Meeting Proposal/Online Collaboration
                                                    i.     CFF – Coordination with CFF and external clinic development – Brian E., Shawn
                                                   ii.     MyHealth project status – updates per participants
                                                 iii.     Facebook meeting volunteers – Monica
  1. Action Items from Previous Meeting (6:00 – 6:10)
    1. Contact both Dr. Milla and Dr. Mohabir regarding the new infection control policy change – Colleen
    2. Check on the status with Jennifer to see if the MyHealth team has been in contact with her regarding emails – Angel 
    3. Check on the status of the Newsletter article regarding new changes and policy from the clinic – Angel
    4. Contact Camille, Elika or Meg regarding updates on Patient Questioner Form – Jay 
    5. Follow up with Joan to investigate "parking cheats" for "unique cases" – Brian
  2. Proposals for New Projects (6:10 – 6:15)
    1. Pending Future Project: Joan and Brian E to contact Christine from MyHealth to see about a possible collaboration between Epic Synopsis and MyHealth

Adjournment - Next meeting 11/19/14

Administrator Administrator invites you to this meeting.

CF Adult Advisory Council Meeting 10/15/14 5:00-7PM
Wed, Oct 15, 4:30 PM | 2 hr 30 min
(UTC-08:00) Pacific Time (US & Canada)

This invite is for the CF Adult Advisory Council Meeting
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Questions call:
Tom Metz
Unified Communications
650 492 3675
Meeting password: a2014
Meeting number: 347401804

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