Monday, February 16, 2015

February 2015 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, February 18, 5:00pm-6:20pm
Location: Blake Wilbur  Room W1084 &
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Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


  1. Introduction (5:00 – 5:10)
  2. Adopt January minutes (5:10)Please review Angel’s minutes on the blog or via her email previously sent to you
  3. PFCC status update (5:10 – 5:40) Joan Scott
  4. CF PFAC Project Update – (5:40 – 6:10)
    1. New Project Proposals
      1. “CF Encounters”
      2.  Issue Management Protocol
    1. Virtual Meeting Proposal/Online CollaborationCoordination with CFF and external clinic development – Shawn
    1. Clinic-Patient Opportunities – Monica/Angel/Elika
      Status (Baseline Determination, NP Questionnaire Update, General Questions)
    1. Council Website
      Input for potential improvements
    1. Patient Questionnaire
  1. Action Items from Previous Meeting (6:10 – 6:20)
    1. Brian: If you are able to get into contact with the MyHealth Team pass along the email issues Jennifer is having. Also check to see if there is a way Jennifer can use MyHealth to send patients forms like a patient’s assistance program.
    2. Brian: Work with Colleen on creating a profile for the Facebook page.
    3. Angel: Inform Colleen of how many CF patients will be in the room during the CF Education Day conference so she can supply masks and hand gel.
    4. Colleen: Email Brian or Angel  Dr. Milla's Vest Cycling Procedure - Complete
    5. Devin: Follow up with Elika about insert in March's Newsletter regarding Baseline Determination, and post on the Facebook Page.
  2. Reminders
    1. Publicize Council and council activities
    2. CF Education Day on March 7
  3. Final Comments/Discussion/Reminders (6:20 – ??)

Adjournment - Next meeting March 18, 2015

Administrator invites you to this meeting on behalf of Tom Metz

“CF Adult Advisory Council Meeting” from 5-7p 2/18/15
Wed, Feb 18, 5:00 PM | 2 hr
(UTC-08:00) Pacific Time (US & Canada)

This invite is for the “CF Adult Advisory Council Meeting” from 5-7p 2/18/15 Meeting
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Questions call:
Tom Metz
Unified Communications
650 492 3675
Meeting password: a1830
Meeting number: 805598492

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