Thursday, April 9, 2015

April 2015 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, April 15, 5:00pm-6:10pm
Location: Blake Wilbur  Room W1084 &
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Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


  1. Introduction (5:00 – 5:10)
  2. Adopt March minutes (5:10)
    Please review Angel’s minutes on the blog or via her email previously sent to you
  3. CF PFAC Project Update – (5:20 – 5:50)
    1. CF Encounters – Lauren
    2. Issue Management Protocol – Angel/Monica/Elika
    3. Virtual Meeting Proposal/Online Collaboration
Coordination with CFF and external clinic development – Shawn
    1. Clinic-Patient Opportunities – Angel/Monica/Elika
    1. Council Website
Input for potential improvements
  1. Action Items from Previous Meeting (5:50 – 6:00)
    1. Monica: Email Colleen suggested topics for next years CF Ed Day.
    2. Monica: Contact Meg about sharing the Issue Management Protocol projects during a Support Group session.
    3. Angel: Follow up with Parking and Transportation on Parking Perks.
    4. Angel: Contact Meg once procedure for Parking Perks has been established. See if Meg can provide verbiage for this perk to be posted on the Facebook page.
    5. All: If anyone notices a general question posted on the Facebook page and you feel needs more information, share it with the council.
  2. Reminders
    1. Publicize Council and council activities
  3. Final Comments/Discussion/Reminders (6:00 – ??)

Adjournment - Next meeting May 20, 2015

Administrator invites you to this meeting.

CF Adult Advisory Council Meeting
Occurs the third Wednesday of every month effective Apr 15, 2015 until Mar 16, 2016.
5:00 PM | 2 hr
(UTC-08:00) Pacific Time (US & Canada)

This invitation is for the CF Adult Advisory Council Meeting taking place the third Wednesday of each month starting at 5 p.m. Pacific

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Questions call:
Kevin Hurley
Unified Communications Specialist
Stanford Health Care
1830 Embarcadero Palo Alto, CA 94303
Office: 650-721-3991
Unified Communications Team: 650-721-2800
Meeting password: a1820
Meeting number: 804383588

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TP-900 Blake Wilbur-Tumor Board W1084

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