Tuesday, February 16, 2016

February Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, February 23, 2016, 5:00pm-6:20pm 
Location: Blake Wilbur  Room W1084 & Join WebEx
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


1.    Introduction (5:00 – 5:10)
2.    Adopt November minutes (5:10)
Please review Angel’s minutes on the blog or via her email previously sent to you
3.    Project Update (5:10 – 5:50)
a.    Patient Survey – Brian
b.    Virtual Clinic Proposal/Online Collaboration – Erick/Brian
Action Items :
Colleen to provide Erick with the name of our contract in IT; Erick to contact IT for a status updates
c.    CF Encounters – Lauren/Devin
Action Items :
Follow up with Zoe regarding adding an insert about the CF Encounters project in the next CF Newsletter; collect feedback from Jennifer & Julian and Joan with clinic input.
d.    Informational Sheet on Masks Devin
Action Items :
Devin to check with the clinic on their recommendations for which mask(s) should be used
e.    Issue Management Decision Tree – Angel/Monica/Jay/Elika
Action Items :
Follow up with Colleen regarding the budget to get the Outpatient Decision Tree brochures forms printed; Email Outpatient Decision Tree brochure PDF file to Meg and Joan; Post Outpatient Decision Tree Brochure on Patient Only Facebook Page.
f.     Coordination with CFF and external clinic development – Shawn
g.    RPQ/MyHealth update – Jay
Action Items :
Jay: Follow up with Christian regarding how the clinic staff would receive the RPQ form; Coordinate with Julian regarding next meeting with the MyHealth Team; Follow up with MyHealth regarding an calendar alarm for patients refill medication request
h.    Clinic-Patient Opportunities – Angel/Monica/Elika
Action Items :
Angel to check with the clinic to determine which meds aren’t available during a hospitalization and what the process should be for patients when using their own medication from home.
4.    Action Items (5:50 – 6:00)
a.    Joan – update on file storage recommendation
b.    Jay – Evaluate and report on new options for pins or badges for members to wear during Stanford visits for council promotion; contact Mary Song regarding resources for council member name badges.
5.    Reminders
a.    Publicize council and council activities
b.    Continue to complete volunteer requirements
c.    Future Projects
CF Patient Medical Compendium
Hospital RPQ
Passport (card used for CF advocacy for other ER visits) URLs? [Angel/Linda]
6.    Final Comments/Discussion (6:00 – 6:10) 
Next meeting March 22, 2016
7.    Closed Session (6:10 – 6:30)

Administrator invites you to this meeting.

CF Adult Advisory Council Meeting Fourth Tuesday at 5:00pm
Occurs the fourth Tuesday of every month effective Jan 26, 2016 until Feb 1, 2017.
4:45 PM | 2 hr 15 min
(UTC-08:00) Pacific Time (US & Canada)

This invitation is for the CF Adult Advisory Council Meeting taking place the fourth Tuesday of each month starting at 5 pm Pacific

Meeting Begins at 5:00 pm
WebEx and TelePresence Connections Open at 4:45 pm

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Questions call:
Kevin Hurley
Unified Communications Specialist
Stanford Health Care
Mobile: 650-272-7579

Unified Communications Team: 650-721-2800
Meeting password: w1084
Meeting number: 801090638

Join Using Telepresence
Video address:
TP-900 Blake Wilbur-Tumor Board W1084

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Call-in numbers
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