Wednesday, March 9, 2011

3-16-2011 Agenda

Please print your own copy of the agenda and review the "attachments" to assist in cross-infection control! 
Anyone calling in needs to do so AHEAD of time. We've asked that call-in or WebEx members get set up 10 minutes before the scheduled meeting time.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.
The Stanford Adult Cystic Fibrosis Advisory Council Agenda

Meeting Date/Time:  Wednesday, March 16th, 2011 from 5:00 – 7:00 P.M.
Location:  Blake Wilbur Conference Room

A.  Introduction of Council Members (if guests are present)

B.  Introduction of Guests (if guests are present)

C.  Approval of Minutes from Previous Meeting:

1. Determining Council Pace and Work Process – Kriss (Norma, Lindsey)
  • Contact information: Members, Advisors, Interested Persons (as noted in bylaws page 3) – Erika 
  • Speed of council
  • Approval process and project completion procedures
  • Living documents
    (add revision note to bottom left corner of all docs? "rev 3/11" or "doc name, rev 3/11"?)
  • "Safe person"
    Should we have a "safe person" (who does not hold an office - not our Chair, not Co-Chair, etc.) who all members can bring their concerns to that will protect anonymity and work behind the scenes to assist with any council member concerns?
2. Proposed WebEx etiquette – Lindsey (Kriss)
  • Please refer to the Adult CFAC meeting agenda each month for WebEx log in and pass code instructions (note: the pass code changes each month).
  • Please log in at 4:50PM in order to prepare for our 5:00PM meeting.
  • Please do NOT place your phone on speaker and please do NOT use your computer's built-in microphone and speakers. It is best to use a headset or a phone for your voice. Please have only one person on a phone or computer at a time.
  • Please identify yourself by name when you are when speaking. 
  • Please let the other members know right away if we (in the room) are not speaking loud or clear enough.
3. How do we ensure all members (particularly WebEx members) are included, heard, and can hear during our meetings
  • how to avoid talking over one another, multiple people talking at the same time, etc.?

4. Adult CFAC Group identity: Facebook group presence  – Eric (Kriss)

5. Business card  
6.  Update on Distribution of Inpatient and Clinic "We Want to Hear Your Voice" Flyers
7. Update on Hospital form "Help us, Help you" – Kriss (Rudy)
8. Council sign up sheet at the CF clinic front desk  – Eric (Kriss) 

9. Per our feedback, CF center is discussing MyHealth - Charlene (Eric and Kriss)

10. Review council projects and CF center response – Kriss (Eric)
11. ACFAC Website up:
  • do we want bios with pictures? 
  • elect a website revision manager for feedback, changes, and additions? Committee? 
  • can this person or committee make changes per their judgement? For example, if they get new helpful links and/or new member bios can they post them and just make note of them on the next agenda for review after the fact? 
  • Kriss will pass off 3 new member bios, and the contact information of who to contact for website revisions  (if we elect a new website revision manager)
12. Bio staff/doctor questions – Ed (Erika, Lori, etc.)
13. "New council member" folder, package, or page – Norma (Jackie / Lori)
14. Create a council resource page? – Kriss    
  • page with links to current files like "We Want to Hear Your Voice" flyer, business cards, etc.?
15. Return patient clinic form – Kriss (Elyse)
  • pdf on web?
  • print a new revised version? (we are out)
17. Get the word out: 
  • Townhall date changed:
    Adult Cystic Fibrosis Town Hall Meeting
    Wednesday, March 23rd, 2011, 6pm to 7:15pm

    Li Ka Shing Center for Learning and Knowledge
    291 Campus Drive

    Masks and Hand Cleaners will be provided.
     WebEx will be available.
  • The CF Adult support group has WebEx.
    Please see and the lower, left corner of the page section "CF SUPPORT GROUP" for WebEx directions each month. 
18. Review bylaw revisions (see agenda item #13 for review file) – Norma
Set date/time for next meeting – Wednesday, April 20, 2011

To attend this meeting via WebEx: 
Meeting Number: 923 861 963
Meeting Password: march

To join the online meeting (now from mobile devices too):
1. Go to
2. If requested, enter your name and email address.
3. If a password is required, enter the meeting password: march
4. Click "Join".

To join the audio conference only:
To receive a call back, provide your phone number when you join the meeting, or call 1-650-429-3300 and enter the access code: 923 861 963.

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