2-16-11 Minutes

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia> (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. If you would like to attend via teleconferencing, please contact Erika Harrington mrs.harrington@sbcglobal.net (the current Advisory Council secretary). She will let you know how you can participate.  (Web conferencing/Skype not yet available.) CF Advisory Council Meeting Minutes 2/16/2011 Present: Council Member: Ed, Dave, Rudy, Rosie, Ann, Lori, Norma, Kriss, Erika, Colleen, Lindsey Via WebEx or teleconference: Lizeth, Caleigh Guests: Lauren, Jackie, Elyse, Arthur  During the closed session the following items were presented, discussed and voted upon: The council voted in 5 new members: Jackie Rotier, Lauren Catron, Jay Archibald, Elyse Elconin-Goldberg, and Laura Steuer.  The council voted to revise the bylaws and include all members in closed sessions. This is revised from including only voting members.  The council voted to enforce attendance and include "members in attendance" and "members not in attendance" on all monthly minutes from this point forward.  Introductory Remarks: All council members introduced themselves for the benefit of those using remote attendance methods. Guests also introduced themselves. Quick Cross Infection Control Reminder given by Colleen. Minutes from previous meeting approved. Old Business: a. Norma Kipp offered to have the Co-Chairperson remind us at the end of our meetings of our new meeting responsibilities or "to dos". It has been approved by council that the Secretary will keep track of Advisory Council attendance and will report any non-compliance to the Advisory Council Chairperson.  b. Proxy voting for an absent CF council member during any meeting was voted upon and passed.  Should a CF member be absent, they can e-mail their vote in writing to any other council member that will be attending the meeting. The council was unable to discuss our presence on Facebook due to Eric's absence. The ACFAC business card was approved.  Kriss will send the pdf to Colleen to print out.  Business cards will be available for distribution at the next meeting. a. We were unable to get an update on the distribution of "We Want to Hear Your Voice" from the clinic side due to the absence of Charlene at the meeting.  b. Rudy was able to give us an update from the hospital side of the flier with positive remarks from the CF community.  Fliers were passed out at the hospital the week of February 13th. c. The e-mail version of "We Want to Hear Your Voice" was voted upon and approved. The new look of the ACFAC website was voted upon and approved to launch. The hospital form "Help Us, Help You" was voted upon and approved by the council in both pdf and Word doc format. A committee for the bio questions for the CF Team has been established.  The new committee is Lori, Erika, Elyse, and Lizeth with Ed being chairperson.  An update will be presented at the next meeting. The "New Council Member" folder is now in a new committee containing Norma, Lori, and Jackie a. Kriss and Lori presented the feedback from their meeting with Dr. Weill. He is happy and eager to help improve the Adult CF Clinic. He would like to meet with ACFAC members on a regular basis.  b. Adult Cystic Fibrosis Town Hall Meeting scheduled for: The Evening of Monday, March 21, 2011 6-7:15pm Li Ka Shing Center for Learning and Knowledge 291 Campus Drive, Room #102 Masks and hand cleaners will be provided New Business: Dr. Weill would like a form filled out prior to patient appointments to that patient concerns  can be addressed.  A form with specific questions was presented by Kriss and approved by council members.  Kriss is willing to try this form out for herself and will present her feedback and the next meeting. Norma will adjust the bylaws to reflect the changes that were voted upon during today's closed session. Members attending the meeting via WebEx need to send their opinions and additional ideas for the clinic visit form to Kriss. Everyone wanting to attend the council meetings via WebEx on a permanent basis   needs to e-mail Kriss. Next meeting is scheduled for Wednesday, March 16, 2011, 5-7pm