Monday, December 5, 2011

November 2011 Minutes

11-16-2011 Minutes

  • Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend if you have an active viral infection or any other contagious condition. If you have CF, keep three feet between yourself and others who have CF. Avoid shaking hands with others. Additionally, individuals with CF who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) or who have cultured Methicillin-resistant Staphylococcus aureus (MRSA) within the past two years, or who are currently culturing a bacterium resistant to all antibiotics (pan resistant) may not attend our sessions in person due to the cross-infection risks to others with CF. If you would like to attend via teleconferencing, please contact Erika Harrington (the current Advisory Council secretary). She will let you know how you can participate. (Web conferencing/Skype not yet available.)

CF Advisory Council Meeting Minutes 9/21/2011


Council Members: Colleen Dunn, Laura Steuer, Ann Robinson, Kriss Benson, Erika Harrington, Lauren Caltron, Jay Archibald, Eric Marten, Ed Kinney.

Guests: Zoe Davies, Dr. Paul Mohabir, Siri Vaeth (member of the CF Parent Advisory Council)

Absent: Lizeth Haber, Dave Cartnal, Jackie Rotier, Elyse Elconin-Goldberg

Introductory Remarks:

  • All council me

Council Business:

  1. From the Pedia

CF Advisory Council Meeting Minutes 11-16-11


Council Members: Colleen Dunn, Ann Robinson, Kriss Benson, Erika Harrington, Laura Steuer, Ed Kinney, Eric Marten, Jay Archibald, Lauren Caltron, Elyse Elconin-Goldberg, Jackie Rotier.

Guests: Arthur Yang, Zoe Davies, Dr. Paul Mohabir

Absent: Lizeth Haber

Introductory Remarks:

  • All council members introduced themselves for the benefit of those using remote attendance methods.

  • Guests introduced themselves.

  • Minutes from the previous meeting were approved.

Council Business:

  1. Kriss Benson has stepped down as Council Chairperson. Tonight's meeting will be her last as Chair. Laura Steuer volunteered and was voted in as our temporary Chairperson through February. Kriss will co-chair to assist Laura as she learns this position.

  2. Conversation about filling council officer positions, office responsibilities, and filling vacant spots before our January election were talked about briefly. Some council members showed possible interest in officer positions that will be available in February. All members have been asked to read the bylaws before our January meeting to get a better idea of what each role is in charge of.

  3. ACFAC Website: Update 2: "Get to Know the Stanford Adult CF Team" questionnaire CF Team response (deadline requested was October 10th).

  4. Add a new Adult tab on the CF center website?
    Suggestions for what would be in this new Adult tab:
    note from last meeting: "How adult CF clinic works"
    note from last meeting: "Your Adult Doctor Choices"
    note from last meeting: "How To Call In Sick"
    note from last meeting: adult mentor program page or blurb
    e. discussion of
    each council member's brainstorming on this topic

    -Each member made their suggestions. Colleen sent out an e-mail listing all of the ideas the members came up with.

  5. Mentor Program discussion and suggestions
    - form for potential mentors (
    review file: coming soon) Laura will send the mentor questionnaireto Dr. Mohabir to review with Meg Devorak.

  6. Council concerns and open discussion period:

    -Lauren and Kriss will prepare "What to bring to the hospital" list for the adult CF website tab and give to Colleen.

    -Laura will connect with Eric Williams regarding WebEx info for January 2012 meeting.

    -Eric will look into the issue of unified communication from the clinic: who writes up all the info from the varied team members after an app't to give to the patient?

    -Reminder: All members need to send the Chair a copy of any presentations to be made at subsequent meeting (powerpoint, visuals, forms to be passed out, etc) for inclusion in Agenda for Webex viewers.

  7. Please note: Adult CF Support Group is on 12/2 with a new start time at 11:30am (new 1.5 hour meetings)

  8. The council will NOT have a council meeting in December. Instead an update will be sent to everyone via e-mail.

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