Monday, June 10, 2013

6-19-13 Agenda

Anyone calling in needs to do so AHEAD of time. Call-in or WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda if you wish to attend this month's meeting via WebEx.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition. 

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) 

Date/Time: Wednesday, June 19, 2013, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room & Webex

1.      Introductions & meeting guidelines (5:00 – 5:05)

2.      Officers (5:05 – 5:15) 
·         Assignment of temporary Secretarial role

3.     Adopt May minutes (5:15 – 5:20)

4.      ACFAC / CF Center partnership projects (5:20 – 5:55)
 Current project: “Supporting newly-diagnosed CFRD adults”

a.        Review of council decisions March - May 
b.        Presentation of project drafts for council input:
·         Bookmark: see document at ­­­­­ Council to give feedback (Ed, Laura)
·         Progress on Social Media/FB page (Brian E.)
·         Text, titles for page (Richard, Colleen)

5.      Council members session (6:00 – 6:30)

·         History and context of clinic/council partnership projects
·         Looking ahead: council priorities, our goals

6.     Quick Updates (6:30 – 6:40)

·         Peer2Peer liaison, status of program (Elyse, Lauren)

7.      Action Items (6:40 – 6:45)

8.      Next meeting: Wednesday, July 19, 5:00pm-7:00pm


To attend this meeting via WebEx:

Topic: CF June Meeting 
Date: Wednesday, June 19, 2013 
Time: 5:00 pm, Pacific Daylight Time (San Francisco, GMT-07:00) 
Meeting Number: 809 129 526 
Meeting Password: Wel2010come 
To join the online meeting (Now from mobile devices!) 
1. Go to

2. If requested, enter your name and email address. 
3. If a password is required, enter the meeting password: Wel2010come 
4. Click "Join". 
To view in other time zones or languages, please click the link:

To join the audio conference only 
To receive a call back, provide your phone number when you join the meeting, or call the 
number below and enter the access code. 
Call-in toll-free number (US/Canada): 1-877-668-4493 
Call-in toll number (US/Canada): 1-650-479-3208 
Global call-in numbers:

Toll-free dialing restrictions: 

Access code:809 129 526 

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