Saturday, January 18, 2014

ACFAC 1-15-14 Agenda

WebEx members should get set up 10 minutes before the scheduled meeting time.  Please see the "To attend this meeting via WebEx" section at the bottom of this agenda.

Advisory Council visitors are welcome; however, attendees must respect the CF Center at Stanford cross infection guidelines. Please do not attend in person if you have an active viral infection or any other contagious condition.

Only one individual with CF may be present in the Blake Wilbur meeting room; this guideline holds for all CF adults regardless of culture status, MRSA, b. cepacia, and so forth. Contact the chairperson Laura Steuer for further information. Staff and community members may be present in the meeting room.

Please have your own copy of the agenda and attachments with you during the meeting.

Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda

Date/Time: Wednesday, January 15, 5:00pm-7:00pm 
Location: Blake Wilbur Conference Room & Webex

Open Session

1.         Welcome & meeting guidelines (5:00 – 5:15)

            - Officer elections: Chair, secretary chair, secretary (Brian E, Angel)
            - Membership/recruitment option (Colleen)
            - Greet new members and goodbye to departing members!

2.         ACFAC / CF Center partnership (5:15 – 5:50)

            a. Our history since 2008 (Ed, Jay)
            b. Directions for the future:

            - What does the clinic need/want?
            - How can this information be gathered successfully?
            - What do our adult CF patients need/want?
            - How can this information be gathered successfully?
            - How can the council work with the staff to bring these results?

Closed Session

3.         Goals worth striving for (5:55 – 6:25)

            a. Our maturing organization (Laura, Brian E)
            - working with Guest Services
            - bringing staff back to meetings
            - staff invested in council; what do we need to be invested in?
            - changes to consider: blog site; meeting time and length; other adaptations

4.         Adopt November minutes (5:55 – 6:25)

            Please review Jackie's minutes on the blog or via her link previously sent to you.

5.             Action Items (6:25 – 6:30) (Richard)

6.         Adjournment; Next meeting Wednesday, February 19, 2014, 5:00pm – 7:00pm

To attend this meeting via the Webex One Touch System:

Attendees should use their computer for video. Connect using a computer that is plugged in and not Wi-Fi.  To enable your camera, click the camera icon next to your name in the WebEx participants list.

Attendees should use their phone for audio not the computer. The reason for the above is that is it takes a lot of power to connect to Wi-Fi and you may be dropped from the call and have to reconnect.



Call-in numbers

Toll-free: 1-877-668-4488

Access code: 341638495

Meeting password: 1234
Meeting number: 341638495

Join Using Telepresence

Video address:


TP-900 Blake Wilbur-Conf RM W1084

Audio Connection

Call-in numbers

Toll-free: 1-877-668-4488

Access code: 341638495

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