Stanford Adult Cystic Fibrosis Advisory Council (ACFAC) Agenda
Date/Time: Wednesday, April 16, 5:00pm-6:00pm
Location: Blake Wilbur Conference Room & WebEx
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
1. Introduction (5:00 – 5:10)
2. Adopt March minutes
a. Please review Angel’s minutes on the blog or via her email previously sent to you
3. ACFAC Project Update – (5:15 – 5:35)
a. MyHealth interviews – all participants
b. MyHealth mockup – Brian E.
c. Facebook review – Monica
4. Action Items from Previous Meeting (5:35 – 5:45)
a. Joan – conversation with clinic staff and getting their involvement
b. Joan – provide update (when appropriate) for cross-domain advisory council, Elyse expressed interest in participating
c. Joan – follow-up on alignment between volunteer guidelines and current ACFAC membership. Includes a follow-up for Jay’s issue on information he submitted earlier.
d. Joan – meet with Ann and Meg concerning the strategy for Ann’s desire to help with fund-raising for the CF community.
e. Brian E. – draw up rough proposal of potential concept for virtual clinic visits, send to Joan (subject of New Project proposal)
5. Proposals for New Projects (5:45 – 6:00)
a. Virtual Clinic Visits
Adjournment - Next meeting 5/21/14, Virtual Meeting Only as Room is not Available