Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Wednesday, August 20, 5:00pm-6:00pm
Location: Blake Wilbur Room W1084
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form. It is recommended you call in for audio as opposed to using your computer.
Advisory Council visitors are welcome. Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room. Please do not attend in person if you have an active viral infection or any other contagious condition.
Please have this copy of the agenda and attachments with you during the meeting.
1. Introduction (5:00 – 5:10)
a. Welcome Annette!
2. Adopt July minutes
a. Please review Angel’s minutes on the blog or via her email previously sent to you
3. CF PAC Project Update – (5:15 – 5:40)
a. Clinic-Patient Opportunities – Monica/Angel/Elika
i. Status Update
ii. Ongoing Tracking
b. Outreach to other advisory boards
i. Angel/Ann report out
ii. NACFC contact – Brian
iii. Patient Family Partner Board report out – Brian
c. MyHealth interviews – no update
d. Virtual Meeting Proposal – no update
4. Action Items from Previous Meeting (5:40 – 5:50)
a. Colleen – provide Joan a list of receipts for the volunteer orientation process.
b. Elika – email Angel the outreach list for other councils.
c. Joan to investigate "parking cheats" for "unique cases."
d. All Members: Open suggestions "in what ways can CFRI improve and increase resources / outreach programs in the community." Currently CFRI provides The Discovery Series, Community Newsletter, Educational DVD's and the Annual Educations Conference. Think of other ways to reach out?
5. Proposals for New Projects (5:50 – 6:00)
a. Clinic form (MyHealth) – Volunteers?
b. Pending Future Project: Joan and Brian E to contact Christine from MyHealth to see about a possible collaboration between Epic Synopsis and MyHealth
Adjournment - Next meeting 9/17/14