Thursday, September 11, 2014

September 2014 Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council

Date/Time: Wednesday, September 17, 5:00pm-6:15pm
Location: Blake Wilbur  Room W1084 & Join Webex

WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines, which at this time allow only one individual with CF in the meeting room.  This week that person will be Angel.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


1.  Introduction (5:00 – 5:10)
a.   Welcome Annette and Shawn!
2.  Adopt August minutes (5:10)
a.    Please review Angel’s minutes on the blog or via her email previously sent to you
3.    Candidates for Vice-Chair (5:10 – 5:20)
4.    Infection Control Policy – Colleen (5:20 – 5:30)
5.    Council Time Commitment Concerns – Discussion (5:30 – 5:40)
6.    Ideas on Improving our Visibility and Increasing Membership (5:40 – 5:45)
7.    CF PAC Project Update – (5:45 – 6:00)
a.    Virtual Meeting Proposal/Online Collaboration – Brian E.
                                                    i.     CFF Collaboration – Coordination with CFF and external clinic development
                                                  ii.     Stanford (internal) – no update
                                                iii.     MyHealth project status – no update
b.    Clinic-Patient Opportunities – Monica/Angel/Elika
                                                    i.     List Definition – Status
                                                  ii.     Ongoing Tracking
c.     Collaboration with other advisory boards
                                                    i.     Angel/Ann report out
                                                  ii.     Patient Family Partner Board report out – Brian E.
1.    Initial Meeting (7/31/14)
2.    Eighth Annual Summit for Clinical Excellence – November
                                                iii.     NACFC contact – Brian E.
8.    Action Items from Previous Meeting (6:00 – 6:10)
a.    AngelContact Jennifer to see if the MyHealth team has been in contact with her regarding email issues
b.    Jay – Contact Camille, Elika or Meg regarding updates on Patient Questioner Form
c.     Joan – investigate "parking cheats" for unique cases
9.    Proposals for New Projects (6:10 – 6:15)
a.    Pending Future Project: Joan and Brian E to contact Christine from MyHealth to see about a possible collaboration between Epic Synopsis and MyHealth

Adjournment - Next meeting 10/15/14

Administrator Administrator invites you to this meeting.

CF Meeting 9/17/2014 5:00PM-6:15
Wed, Sep 17, 5:00 PM
(UTC-08:00) Pacific Time (US & Canada)

This invite is for the CF MEETING
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Questions call:
Tom Metz
Unified Communications
650 492 3675
Meeting password: 2013
Meeting number: 346312029

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