Thursday, September 10, 2015

September Agenda

Stanford Adult Cystic Fibrosis Patient Advisory Council
Date/Time: Tuesday, September 15, 5:00pm-6:20pm 
Location: Blake Wilbur  Room W1084 & Join WebEx
WebEx members should get set up 10 minutes before the scheduled meeting time using the link provided in the green button on the WebEx dialog below or the link at the bottom of the form.  It is recommended you call in for audio as opposed to using your computer.

Advisory Council visitors are welcome.  Attendees must respect the Stanford CF Center cross infection guidelines.  Please do not attend in person if you have an active viral infection or any other contagious condition.

Please have this copy of the agenda and attachments with you during the meeting.


1.    Introduction (5:00 – 5:10)
Welcome Back Annette Hernandez!
2.    Adopt August minutes (5:10)
Please review Angel’s minutes on the blog or via her email previously sent to you
3.    CF PFAC Project Update – (5:10 – 5:45)
a.    PFAC Update – Joan
b.    Infection Control Policy – Shawn/Lauren/Colleen
c.    CF Encounters – Lauren/Devin
d.    Issue Management Protocol – Angel/Monica/Elika
e.    Virtual Meeting Proposal/Online Collaboration – Erick/Brian
f.     Coordination with CFF and external clinic development – Shawn
g.    MyHealth update – Jay
h.    RPQ – Jay/Julian
i.      Informational Sheet on Masks Devin
j.      Clinic-Patient Opportunities – Angel/Monica/Elika
4.    Action Items (5:45 – 6:00)
a.    Ed: Work with Mary, Joan and Meg to formalize an introduction plan going forward for volunteer services
b.    Joan: Explore the option of the phone line for CF Encounter Project
c.    Joan: Contact Security regarding getting Devin and Ed Badge Access to the Conference Room.
d.    Colleen: Check and see if the CFF Center Anonymous Box can be moved to the Adult Center Website.
e.    Jay: Email Julian or Elika updated RPF Form
f.     Brian and Joan: Set up quarterly meeting with Dr. Mohabir
g.    Angel: Send Shawn council member email list
h.    Brian/Colleen: Work with Mary on by-law alignment requirements discussion
5.    Reminders
a.    Publicize Council and council activities
b.    Continue to complete Volunteer Requirements
c.    Future Projects
CF Patient Medical Compendium

6.    Final Comments/Discussion (6:00 – 6:10) 
Next meeting October 20, 2015
7.    Closed Session (6:10 – 6:30)

Administrator invites you to this meeting.

CF Adult Advisory Council Meeting Third Tuesday at 5:00pm
Occurs the third Tuesday of every month effective Jul 21, 2015 until Aug 17, 2016.
4:55 PM | 2 hr 5 min
(UTC-08:00) Pacific Time (US & Canada)

This invitation is for the CF Adult Advisory Council Meeting taking place the third Tuesday of each month starting at 5 pm Pacific

Meeting Begins at 5:00 pm
WebEx and TelePresence Connections Open at 4:50 pm

• Telepresence attendees please press the join button on your touch screen to connect.
• WebEx attendees please click the green "Join Using WebEx' tab within this invite.
• Next join the WebEx audio bridge by phone. Do not use computer audio.
• Please mute your phone.
• WebEx attendees to enable your laptop camera click the camera icon next to your name in the meeting participants list.

Questions call:
Kevin Hurley
Unified Communications Specialist
Stanford Health Care
Mobile: 650-272-7579

Unified Communications Team: 650-721-2800
Meeting password: a1820
Meeting number: 804383588

Join Using Telepresence
Video address:
TP-900 Blake Wilbur-Tumor Board W1084

Audio Connection
Call-in numbers
Toll: 1-650-479-3208
Toll-free: 1-877-668-4493
Access code: 804383588

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